Information resources

Intended for: Parent of a young person with OCD, Post Treatment, Education Professionals, Person with OCD

Highlighted Resources 3 resources

Overview of CBT - one of the recommended treatments for OCD
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A short film explaining OCD and the treatment available.
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A new NHS complaints leaflet
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Our Factsheets 13 resources

What good CBT should look like
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Looking at medication for OCD
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Information on supporting a person with OCD
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Simple look at treatment options
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To take with you on your first visit to your GP
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An information leaflet on Perinatal OCD, taken from the Royal College of Psychiatrists website
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The Centre for Clinical Interventions (CCI) of Australia's resources for overcoming Body Dysmorphia
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Tips on how to tell a loved one about your OCD, written by Youth Advisory Panel volunteer, Nicole.
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The term 'Pure O' is often used to describe a certain manifestation of OCD, but what does it actually mean? Find out more in this factsheet.
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If you live in the UK, you can be assessed and, once you’ve been diagnosed, treated for your OCD through the NHS. Some people choose instead to have treatment privately. This factsheet explains how to find a private therapist and what to look out for when choosing who you work with.
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OCD is a treatable illness, and with the right treatment a majority of people who engage with therapy get a good quality of life back. This factsheet can take you through some steps to help you engage with the right treatment and achieve this for yourself.
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There are a number of therapies and mental health treatments out there that can help with a variety of things, and that are sometimes suggested or sought out for treatment of OCD.Apart from medication, Cognitive Behavioural Therapy (CBT) with Exposure and Response Prevention (ERP) is the only therap
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Self Advocacy information and worksheets 19 resources

Information and worksheets to help you to navigate the treatment system and to communicate more effectively.
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A simple guide to help you identify which routes you can take to access treatment for your OCD or BDD
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Information and top tips to help you to develop a plan of action so you can self advocate.
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The first step to self advocating is making a plan, this worksheet will help you set out what it is that you want to achieve.
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Communicating effectively is essential when it comes to self advocating. This guide provides information and useful tips to help you communicate clearly to ensure you are being heard.
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A useful resource which will help you prepare for any upcoming meetings and/or appointments.
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It can be difficult to describe the symptoms of your OCD/BDD, but the information you provide the healthcare professional with is vital in ensuring you receive the right diagnosis/treatment.
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A brief overview of the recommended treatments for OCD/BDD.
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A useful worksheet to help you plan for meetings and appointments.
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A useful worksheet to help you summarise important appointments.
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A worksheet which will help you keep track of the medication you are prescribed.
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A worksheet aimed to help you keep track of your CBT sessions.
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Information and tips on how to effectively communicate through letter writing.
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Information and tips on how to effectively communicate during telephone calls.
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A useful way to keep track of telephone conversations.
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IAPT services provide a range of talking therapies for various mental health conditions (including OCD). They are free to access as they are part of the NHS.
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CMHTs are secondary care services provided by the NHS. They are made up of a multi-disciplinary team of mental health professionals working with adults, often between 18 and 65.
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Information and tips on how to effectively make a formal complaint, including a useful worksheet.
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The Equality Act 2010 can provide you with protection from discrimination and give you the right to request reasonable adjustments when accessing services or at work/in housing/in education.
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Advocacy and Your Rights 13 resources

Covering your rights if you are detained under the Mental Health Act because of your OCD. Please note that this is a newly revised resource.
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Information about our advocacy service
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OCD affects 1-2-% of the general population and most people living with the condition manage it well and never enter hospital. There may be times however, when you become unwell and need to enter hospital for a period of treatment.
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This guide will give you the information that you need to know about securing a referral for your child to a national & specialist OCD service. It has some tips and ideas on how you can best present your child’s case to their Psychiatrist, who will need to make the referral and who might need to make a request to your local funder to pay for their treatment. This guide can be used for related conditions such as Body Dysmorphic Disorder (BDD).
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Obsessive Compulsive Disorder (OCD) is a hidden condition that affects between 1-2% of the population and is frequently misunderstood. This leaflet will help you as an employer to understand OCD and how people with the condition can contribute to your workforce and deliver their best to you.
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Managing your OCD at work can be difficult. Some people hide their condition whilst others declare it. Whatever you choose to do, knowing your rights and exploring your options is essential.
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This is a template letter that you could use to request your Consultant Psychiatrist to refer you to a national & specialist OCD service. Revised April 2014
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Having a clear understanding of your rights and the help that is available to you means that you can be more in control of your treatment.
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This guide will give you the information that you need to know about securing a referral outside your area to a national & specialist OCD service. It has some tips and ideas on how you can best present your case to your Psychiatrist who will need to make the referral and who might need to make a request to your local funder to pay for your treatment. This guide can be used alongside the referral request template letter produced by OCD Action’s Advocacy Service and available on the OCD Action website or via the OCD Action office. It can also be used for related conditions such as Body Dysmorphic Disorder (BDD) or health anxiety.
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Whether you are a tenant or a home owner, there could be times when your OCD is making your life very difficult.
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If you are diagnosed with OCD and you use more water at home than is considered normal usage, then you MAY be entitled to a capped rate discount with your water company.
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Information about Community Mental Health Teams, referrals to them, and the assessment process.
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Videos and Presentations 41 resources

Coping with Depression
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Looking at how you can help yourself
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Getting the most out of your CBt - Paul Salkovskis
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Getting the most out of your CBT
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Looking at coping day to day
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Satwant Singh looks at the role that support groups can play in supporting a person with OCD
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A look at depression and OCD
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A look at coping with health anxiety
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Looking at reassurance in OCD
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A presentation by Katie d'Ath on how to help yourself day to day, given at National Conference 2014
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A presentation by David Veale on OCD and depression, given at National Conference 2014
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A presentation by Lynne Drummond on revisiting Cognitive Behavioral Therapy (CBT), given at National Conference, 2014
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An inspirational speech by Jo, given at National Conference, 2014
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A presentation given by David Veale at our 2015 National Conference, on whether Mindfulness meditation is relevant to OCD and BDD.
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A presentation given by David Veale at our 2015 National Conference, on how to recognize symptoms of depression and generalised anxiety, and useful tips to help manage your mood.
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A presentation given by Karina Lovell at our 2015 National Conference, on how to get the most out of your Cognitive Behvioural Therapy.
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A presentation given by Lynne Drummond at our 2015 National Conference, looking at new updates with OCD.
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A presentation given by Lynne Drummond at our 2015 National Conference, looking at how best to support a person with OCD.
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A presentation on 'How we see OCD', given by journalist and author, David Adam, at our 2015 National Conference.
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A truly inspirational speech given by Youth Advisory Panel (YAP) member, Ellen, about her experiences of living with OCD
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A talk given by Professor David Veale at our 2018 National Conference.
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A presentation given by Dr Lynne Drummond at our 2018 National Conference.
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An inspirational speech about overcoming intrusive thoughts, given by Rose Bretécher at our 2018 National Conference.
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An inspirational speech given by David and Laurenne Goldstone at our 2018 National Conference.
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A truly inspirational speech given by Chair of the OCD Youth Panel, Richard Taylor, at our 2018 National Conference.
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A Q&A session with crew and contributors from the film 'UNSTUCK: An OCD Kids Movie', which took place at our 2018 National Conference.
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A workshop delivered by the OCD Action Advocacy team on how to get what you want using self-advocacy skills.
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A question and answer session about effective treatment for OCD, with Professor David Veale, Dr Lynne Drummond, Dr Rob Willson, Dr Amita Jassi and Ashley Curry.
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This short film features young people and parents of young people who have been treated for OCD. The goal of the film is to raise awareness of the condition and demonstrate how treatment can have a life-changing impact on those affected and their family. The film, “OCD is not me” was mad
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For a final year university project, Amber Griffith produced a short, yet harrowing video about the realities of living with OCD. Accompanied with a poetic voice over, Amber shares how her OCD affects her daily life, from the compulsive thoughts, to the crippling compulsions which accompany the
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An inspirational speech given by Sophie and David Goldstone, at our 2019 National Conference.
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Author Rose Cartwright and TV presenter Sean Fletcher speak about how OCD is represented in media.
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A presentation delivered by professor David Leave at our 2019 National Conference, in which he asked audience members to speak to and challenge their OCD on stage.
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Professor Paul Salkovskis provided an update on current treatments for OCD and explored future psychological help during his talk at our 2019 National Conference.
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A presentation given by leading OCD expert Professor Paul Salkovskis at our 2019 National Conference.
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Professor David Veale and author Rose Cartwright discuss intrusive sexual and violent thoughts and answer questions from the audience, at our 2019 National Conference.
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A Q&A panel with Dr Amita Jassi, Dr Bruce Clarke, Professor David Veale, Dr Ilenia Pampaloni and Professor Paul Salkovskis - chaired by Maria Bavetta (Maternal OCD).
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A panel discussion with OCD Action's Advocacy team at our 2019 National Conference.
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The closing inspirational speech given by Dan Furlong at our 2019 National Conference
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Answering your questions on recovering from Maternal OCD - Dr Fiona Challacombe, Catherine Benfield, Kim French and Diana Wilson (Maternal OCD)
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A video message about OCD from Johnny Mercer MP who is also the Chair of the All Party Parliamentary Group for Mental Health
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Campaigning 2 resources

A downloadable poster for OCD Week of Action
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Facebook and Twitter banners for OCD Week of Action
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Schools 4 resources

This guide is for parents who have a child who is suffering from obsessive compulsive disorder (OCD). It is about how OCD may impact on their lives at school or college and how you can help.
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This guide is to inform you about obsessive compulsive disorder (OCD) and the impact OCD can have on the lives of your students. It also gives you advice on how to help the young person and work with their parents to support them as much as possible.
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To assess students’ attitudes toward Obsessive Compulsive Disorder. By the end of the lesson students will be aware of their own attitude towards Obsessive Compulsive Disorder
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A short film by OCD Action, highlighting the effects that OCD can have on students and what signs educators can look out for.
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From the Online Community 18 resources

Inspirational Quotes submitted by Forum users
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Forum members share their tips on dealing with OCD day to day
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A video created by Twitter user @secretillness, following the success of the Twitter community reclaiming the #OCDproblems hashtag.
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A video created by Emily, following the success of the Twitter community reclaiming the #OCDproblems hashtag.
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Journalism student - Sonal Gupta's radio documentary - 'OCD is not just hand washing'
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 [View the story "Week of Action - Twitter chat on changing stigma" on Storify]
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  [View the story "OCD Week of Action - twitter chat on support groups" on Storify]
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[View the story "OCD Week of Action - Twitter chat on Advocacy" on Storify]
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  [View the story "OCD Week of Action - Twitter chat on OCD, BDD and Treatment" on Storify]
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[View the story "OCD Week of Action - Twitter chat on Child and Adolescent Mental Health" on Storify]
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Ashley Curry and Kirsty Inman's appearance on HCR104fm, where they speak about OCD and their experiences with it.
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A booklet put together by service users from The Wirral and Liverpool areas, which combines artwork, poetry and personal stories from people battling mental health issues, and aims to inspire, provide hope and useful tips to help on the journey to recovery.
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Information and resources for HR professionals on how spot signs of OCD and support employers at work.
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MAN_AGE aims to publish meaningful stories of perseverance amidst mental health struggles in an effort to challenge unnecessary societal pressures, create a community of voices and combat isolation.Visit the MAN_AGE websiteTwitter: @ManAgeOfficialInstagram: @ManAgeOfficialFacebook: @M
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An article looking at Trichotillomania, the facts, treatment and personal stories
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An article written by Daisy Yuhas for Spectrum News: www.spectrumnews.org
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Resources from the Miscarriage Association detailing support available during and after pregnancy loss.
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Books and further reading 6 resources

Full NICE Guidelines
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Outlines how OCD should be treated
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Overview of the approved treatment for OCD
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General OCD book list, including personal accounts of OCD, as well as books written by OCD specialists.
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Books especially for young people and for families
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Other recommended reading relating to OCD
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Policies & Website Guides 2 resources

About the Support Group Charter, an OCD Action initiative working with support group facilitators to identify best practice
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More detail about our Helpline and Email service. Revised 01/14 Review date: 01/15
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External Links 6 resources

Maternal OCD is a charity that focuses on support for mothers with OCD
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Links to OCD related charities in Europe
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Links to OCD related charities and groups in the USA and Canada
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Links to OCD related charities and groups in Australia and New Zealand
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"Everything works for somebody, but nothing works for everybody."-quoted from this article 'Ten things you need to know to over come OCD' An article by Fred Penzel who has been involved in over 850 different OCD cases. Here is his take on what 'Ten thing you need to know to over come OCD'. Talking about the different methods, and treatments available, as well as how to get the best uses out of them.
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Information about the International OCD Foundation, a non-profit organsation providing support, education and resources to those affected by OCD and related disorders, as well as professionals.
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