Last year we developed a self-advocacy toolkit, designed to help you fight for your rights when accessing treatment or when facing issues at work/in education, or with housing. The toolkit has been available to download (in full or in part) from our website for the last year, and has been a really useful tool for many people.
Support & Treatment
Registered stakeholders and individuals have been invited to comment on whether the NICE clinical guideline on OCD and BDD treatment should be updated.
This is a really important opportunity for you to have your say on the guidelines for treatment for OCD and BDD, including: whether the stepped care pathway currently recommended in the guidance needs reconsideration, whether SSRIs are increasingly being used as first-line treatment for young people with OCD and whether paedophilic and violent intrusive thoughts should result in the raising of safeguarding concerns?
Young people who have been treated for OCD have featured in a film designed to raise awareness and provide hope for parents whose children have the debilitating condition.
The film, called ‘OCD is not me’, was made in partnership with OCD Action, and South London and Maudsley NHS Foundation Trust.
It features patients from across the UK who have been diagnosed with OCD and received treatment for it in the hope it will provide support for other children and their families.
The Mental Health Act 1983 is the law in England and Wales that covers the assessment, treatment and rights of people with a mental health condition. This includes when a person can be admitted, detained, and treated in hospital without their agreement. The Mental Health Act is currently being reviewed, and the views of service users who have been detained under the Mental Health Act and their carers are being sought as part of this review.
If you are able to, please fill out the relevant survey listed below.
OCD Action is very aware of the difficulties involved in applying for and securing benefits when you have OCD. We receive an ever increasing number of requests for help and advice in this area. Unfortunately, we do not have the expertise to provide such advice nor do we have the resources to complete the often lengthy and intrusive forms that are required or to accompany people to medical assessment appointments.
Anyone who is affected by a mental health condition deserves the right to good quality treatment. We know that the NICE Guidance recommendations for OCD (Cognitive Behavioural Therapy and medication) are really successful in treating OCD and related disorders, and yet there are still far too many people unable to access good quality treatment.
Reality Check Support Group in Macclesfield is 10 years old!
From left to right: Bev Nixon, Louise Coppack, Maureen Brotherston, Emma McNeely, Debbie Cox and Honor Simpson
Reality Check, the OCD, BDD and Hoarding Support Group in Macclesfield was set up 10 years ago by Emma, Honor and Debbie. It was in response to Emma dealing with her own OCD and realising that there was no provision for ongoing support in their local area.
At OCD Action, we want to ensure our services are reaching as many people affected by OCD as possible. The launch of our online support groups back in November 2013 allowed us to reach out to those who may not be able to access support locally. The existing eight online groups have proved extremely popular, with people from all over the world attending. Taking into consideration valuable feedback from our service users, the Even Better Together team are now pleased to announce that they will be launching two new online support groups in October:
Further Guidance on Your Right to Choose a Consultant-led Outpatient Mental Health Service Anywhere in England
Since April 2014, if you live in England, you have had the right to choose the consultant-led outpatient mental health service your GP refers you to. This service can be anywhere in England and this right means that the same rules apply for mental health services as for physical health treatment.
At OCD Action, we speak to many people who are having difficulty accessing good quality treatment for their OCD, despite the fact that from April 2014, adults with mental health problems have had the legal right –
‘to choose which provider and consultant or mental health professional will be in charge of their care when they attend their first outpatient appointment’.