OCD Action has been approached by NICE (National Institute for Health and Care Excellence), as they are developing a piece of Interventional Procedures Guidance for Deep Brain Stimulation (DBS) for OCD.
DBS is a form of neurosurgery that has been historically used to treat Parkinson’s disease and is now being researched as a new treatment for OCD. This surgery involves the insertion of thin wires into specific areas of the brain, which are connected to a battery pack placed in the chest wall, and which stimulate specific areas of the brain. More information can be found in this factsheet.
NICE states that current findings are not yet strong enough to say whether this is a reliable treatment, however they would like to develop a guidance to look at procedures used for diagnosis or treatment.
They have asked individuals and organisations like OCD Action to share their views on the procedure, so we are looking to gather feedback from people who have had DBS for OCD, in order to ensure our views are representative of our service users. If you have undergone DBS and would like to share your thoughts with NICE via OCD Action, please email by 17th December 2019.
You can also share your individual experiences via this survey. The deadline for this is 18 December 2019.
There will be an opportunity to comment on the draft guidance at a later date, we will be sure to update you all via our website and social media channels about this.
Please note, currently the only clinically recommended treatments for OCD are Cognitive Behavioural Therapy (CBT) including Exposure and Response Prevention (ERP) and/or medication. For most people with OCD these treatments prove effective and are delivered by local services. Where people have more severe symptoms of OCD, other mental health conditions and for whom local treatment has not proved to be successful, specialist intensive CBT is available with very positive outcomes. If you'd like information about CBT with ERP and medication, or you'd like some support accessing these recommended treatments, please get in touch via our Helpline: 0845 390 6232, .