Obsessive-Compulsive Disorder (OCD)
Unregistered
Dear all
Truddles is in real need of your support right now. She is being let down by the NHS as so many of us have been. She (like me in the past) has also been labled as selfish. This is really disgusting. Have they learned nothing over the last 14 years - since I was driven to the brink by such unkindness?
Messages of encouragement will really help her to keep her spirits up and hang on in there.
Thanks and love to you all
Anne (Glad) xxx
truddles
im sorry its so bad for you at present, the treatment you have received is unkind and unfair we all deserve so much better. as for being selfish thats rubbish you are kind and geniune and i value your help and support. im here for you as is anne stay strong hun
love to you
annette xxx
Thank you both for your support.
I am at a complete loss as to how to proceed. I've tried my best to get the treatment that I need and my knees are sore from begging. I just want to get my life back.
I haven't a clue as to how to proceed as every time I open my mouth I get another label slapped on me.
I'm never going to get out of the mess that I'm in.
Thanks
Truddles
Hi Truddles,
Sorry to hear things are not going to well for you at the moment.
Like i said before i am here for you, as are many others from this forum.
I hope things start to get better for you & that you get treated properly and recieve the help and treatment you need and deserve.
Fairymouse
Dear Truddles
I'm sending you my sincere hopes for a brighter future, and I'm standing in solidarity with you now.
Parvez
Unregistered
Hi Truddles
I am still on line and here to listen.
Love
Anne
Unregistered
Truddles,
I'm so sorry that you're having a rubbish time. 
I truly hope that things get better for you as you seem like a really nice person. 
At the very least, I hope that you can find some happiness this Christmas.
Hey there Truddles -
here's wishing you the very best. I bet all of us are keeping our fingers crossed for you. As I am in Holland, I don't really know how the NHS functions in regard to mental disorders. So I can't really imaging what kind of problems you encounter. Feel free to PM me if you have any theoretical/technical questions about how to present your own problems in such a way that the clinicians can't do anything else other than their utmost best to give you the treatment you are in need of.
Hang on in there, cheers,
Cuthbert.
Many thanks for the support - I really do need it at the moment....things are going from bad to worse. To add insult to injury my trigeminal neuralgia is starting to play up so will try to start the long rituals for bed.
Will speak again and reply to people tomorrow afternoon, so please don't worry if you don't hear from me until then.
Thanks to you all - without you I'd have ended it all.
MERRY CHRISTMAS TO YOU ALL 
I will speak tomorrow.
Truddles
Unregistered
Hi Trudy
I have just missed you by two or three minutes.
Hope you sleep well.
Will write again tomorrow
Annexx
Thanks to everyone for your support.
You have been like a family to me and for that I thank you all.
I still want to end it all, but will do my best to carry on as best I can.
I'm back from the hospital and will start catching up on my post when I've eaten.
Truddles.
PS It's cold, windy we've already had sleet and it looks as if it's attempting to snow.
Hi Cuthbert,
Sorry for the delay in replying to your kind message of support, I'v been feeling extremely low and so writing replies has been difficult. I apologise for my rudeness.
How are you today?
With regards to the NHS and mental health issues it is always tomorrow (come to that the same applies to physical conditions) and as you know tomorrow never comes. I saw my Pain Management Consultant today and he thinks the mess that I find myself in is a disgrace. He says that as I have so many conditions (most of which are physical) that all interact and exacerbate each other that it needs one person to coordinate all the doctors and treatments. He also thinks that it should be one of the Consultants that deals with my physical conditions as at the moment too much emphasise is being placed on my mental health and that the physical conditions are at the root of all my problems. He also says that in the twenty first century it shouldn't be beyond the team to contact the neurologist to see if there was something that I could take for the OCD and depression without exacerbating the epilepsy like the escitalopram did. He also said that they can't leave me managing on only two or three hours sleep a night like I am at the moment.
It seems that in this country as soon as you have a mental health issue you aren't allowed to have anything physical wrong with you. They just say that it is psychosomatic regardless of what the test results show. They treat you as if you were the village idiot.
I do find your posts make for interesting reading.
Thanks for your support.
Truddles
Aargh, the curse of being under several different departments! All of them want to make it the others' problem...
Three hours' sleep a night! And they're just sitting on their backsides? I'm glad the Pain Management Consultant is so sensible. At least you have one doctor on your side. Could you get him to contact one of your other consultants saying he is concerned? Sometimes they're more inclined to listen to another doctor than to their patient, especially one they can dismiss as a lunatic! Shouldn't be that way, of course, but since it is...
Have you heard from the OCDAction Advocate yet?
Hope things improve immediately, if not sooner.
Wombat140
Hi Wombat140,
Nice to hear from you again. How are you today?
Thanks for your support. I now feel truly blessed to have found such good friends on the forum.
He is going to speak to my Endocrinologist as he is supposed to coordinate my care, though it'll only be with a lot of prompting from me. You're right they have labelled me as a lunatic; as for them it's the easy option. It's easier than dealing with the actual issues. The only consolation is that I'm not alone, there are a lot of people being treated the same way.
All the surgeries and hospitals have posters saying that their staff deserve to be treated with respect - What about us? We too deserve respect, but many patients especially those with mental health issues don't get the respect that they deserve.
Jude the OCD Advocate has spoken to someone local who hopefully will be able to be more hands on as they are local. Jude has been most helpful and has treated me with nothing but the utmost respect. She certainly has worked hard on my behalf.
I'm not well and I shouldn't have to fight them as well as the various medical problems that I have.
Thanks
Truddles
Great! I'm so glad you've finally found some people who can help you out with the doctors. So perhaps things are finally getting moving. It's a real shame they're being so useless, but fingers crossed that something will start happening now.
I'm OK today thanks. At the moment I'm doing quite well against some of the OCD, and the things I can't (yet) do anything about haven't cropped up too much. Hope you're not feeling too ropy today.
Best of luck,
Wombat140
Hiya Truddles -
thank you for replying, that was very kind. I did have my own strange experiences with mental care in the Netherlands. Let me give a few examples:
- for a long time benzodiazepines were handed out to OCD patients, as the 'medicine of choice'. Doctors usually are addicted to 'the protocol'. So: valium, in case of anxiety disorders. Had they simply done 1 evening of study, they'd seen that benzo's don't alleviate OCD, and are extremely addictive. They should be prescribed 2 weeks to the max. I had them for 10 years, in ever increasing quantities. Withdrawal symptoms: worse than those of alcohol.
And all the time there was the possibility of clomipramine, but it was never mentioned.
- OCD patients in general have quite a lot of guilt feelings. But many 'professionals' activate those feelings by coaxing you into different behaviour. They should know better.
- clinicians are prone to follow the fashion of the day. Now, they advise 'mindfulness', a new fad in mental health care. Tomorrow it will be something different (hey: in Medieval times, exorcism was the 'treatment of choice'... I never found success rates, by the way).
I am doing relatively well, thank you for asking. The paroxetine has taken away my checking compulsions to a huge extent, and I am currently concentrating on fighting the hoarding. I have good hopes that it will work out fine.
Best wishes and kind regards, Cuthbert.
Oh, for goodness sake. I'd have known that you don't use Valium for OCD - at least not until you've tried everything else. When was that?
- clinicians are prone to follow the fashion of the day. Now, they advise 'mindfulness', a new fad in mental health care.
Hi,
That's all I've got for the OCD is Valium and if anything it's making the situation worse. I know that it's not easy with epilepsy as so many of the meds make the seizures worse. But it is the age of communication and they could have asked the advice of the neurologist now instead of making me wait on valium for a whole year. I'm in a worse state than when I started with the MHT and they don't care. More importantly they shouldn't have delayed the referral and they should have sent me to the right Neurologist not an MS specialist. That has further delayed things. It's not words we need it's action and the appropriate action at that.
They wont even sort the lack of sleep out.
Sorry but they are really annoying me the way they not only waste money but human lives.
Rant over.
Truddles
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