OCD Action

Unregistered

Hi all

Just to say that if you want more information about our special survey and the book we are writing from our own perspectives, please look in on our Face Book page: The Project: A Book for sufferers of OCD by Sufferers of OCD.

We constantly keep it updated so you can see how many surveys have come in and what additional help/contributions we need to make the book successful.

Any photos to make the wall look inspiring would be gratefully received.

Love and many thanks

Anne and Andrea (page administrators)

Mon Jul 26 2010 9:57:30 #
mama
Member

Yes my friends I encourage you to 'like' the page so you can recieve the updates. If you have not 'come out' yet about your OCD and people ask you about it you can always say 'Yes, I'm helping out on a research project that I find worth-while' and leave it at that. Anyway we have 126 complete and still need more, so please take 20 minutes and fill out a survey if you have not yet. Thank you to all of those who have and will participate!
Andrea

Mon Jul 26 2010 19:33:07 #
Unregistered

Hi

Andrea, great to have you back on the forum. We have missed you!

As Andrea says, we would love to have more of you to sign up to our Facebook page by saying you 'like' it. The more who sign up, the more likely it is that others will join.

There is still so much stigma attached to OCD. Yet I am not sure why! Attempts to take the stigma away seem to have worsened the problem. I have been told that in some parts of the U.S. it is considered 'quarky' to have OCD - the in thing (a sort of invisible designer label?).

I do hope that one result of Our Book will be the end of both this stigma and this silliness. Why should we be ashamed of having a condition over which we have little control. Why should we have to hide it? Why should we allow our condition to be trivialised.

I am not ashamed to admit I have OCD. I only regret taking so long to readily admit I have it. When I finally told my professors at Uni, they thought no less of me. The references I was given were glowing. I asked a friend at Xmas if he thought I was alright after admitting I had it. He said: 'You are more than alright, Anne!.' Quite so we are more than alright!

Anne

Tue Jul 27 2010 8:32:25 #
Unregistered

Hi again

My last posting for the week.

The survey has quietened down again. We do hope that those of you who have not completed one will put aside some time.

The surveys we have received have helped put a different perspective on what makes our OCD worse as well as what makes it better. We hope that, as a result, we will be able to fill in a few missing pieces of this complex puzzle.

As Andrea rightly said you are wonderfu, thanks for your support.

Anne and partners from both sides of the Atlantic.

Fri Jul 30 2010 11:05:30 #
Unregistered

Hi again

We have 21 'members' on our Facebook page including (to my great delight) a leading CBT therapist.

35 of you log in regularly - it would be so great if more of you would sign up to our page. It would be a good way of getting rid of this stigma once and for all, as well as telling your friends and family that you do have OCD but are still the same person.

I remember reading in a book that one remote tribe dealt with stigma by airing it immediately. As the different tribe mebers lived a long way apart the message was spread by voice. If someone had a problem the mesage was passed from member until the whole tribe knew about it.

It is not easy admitting you have OCD. But, as knowledge grows, myths and untruths and the stigma which accompany them should hoepefully start to fade.

Love to see some more of you on the page.

love Anne

Tue Aug 3 2010 10:03:33 #
poppyfields
Member

Facebook is a splendid way of getting attention to our 'difficulties' the aim being to enlighten non ocd sufferers and give hope to sufferers that they are most definately not alone and on one of the very popular If you've not already done so, please consider going onto facbook and 'liking' The Project: A Book for sufferers of OCD by Sufferers of OCD. As Andrea says, if you've not yet 'come out' and don't know what to say if your friends ask you about it, then just say as much or as little as you want. The Project - Anne's book written by an ocd sufferer with the help of other ocd sufferers needs all the support we can give and i for one, can't thank her enough for her efforts, not to mention looking forward to reading the finished book and helping raise funds for more ocd research.......

Tue Aug 3 2010 21:06:06 #
Unregistered

I don't have a facebook...

Tue Aug 3 2010 22:17:06 #
poppyfields
Member

Hi Jess, i resisted Facebook for years but now know it's as safe as you make it and i love it. When you join you can set it up to be as private as you want it to be and only ever accept friends requests from people you know. Before you know it, you are looking in every day just to see what all your friends are up to and saying hi to them. It's great as far as i can see and can reach out to so many people. Join and give it a try. You can always unjoin if you hate it or don't want to be bothered. Anne - our writer of 'The Book' has a leading CBT therapist 'liking' the page on it - congratulations Anne - YOU ARE DOING A GRANDE JOB Pops

Wed Aug 4 2010 9:47:56 #
Unregistered

I don't think I will join Facebook to be honest. Partly because I've had enough bad experiances with Blogger and partly because I doubt my mum would let me due to said bad experiances on Blogger.

Anyways, so this book, how do we write for it and how do we send it to each other and consult each other about it? Do we PM Anne?

Wed Aug 4 2010 20:34:17 #
Unregistered

Sorry, just being a bit thick...

Wed Aug 4 2010 20:34:55 #
poppyfields
Member

Anne would be more than happy to hear from you and a pm might be a good idea, as you can discuss your individual case with her and as we all have different and varying degrees of ocd then whatever you can 'share' will be more than welcome i am sure. Pops

Wed Aug 4 2010 22:14:07 #
poppyfields
Member

P.s. No idea what Blogger is and can only speak from my own experiences on Facebook as being completely non threatening as I AM IN CHARGE of who i accept as friends, therefore letting them see my page and what i'm getting up to. When setting up, just make sure you make yourself as safe to the outside world as you possibly can and then ther should be no problemos. Anne will be pleased to hear from you if you wish to contribute to her book i am sure.... Pops

Thu Aug 5 2010 8:47:07 #
poppyfields
Member

To all you new guys. We're on Facebook. Go see us and like our page. The more the merrier. Anne one of 'us' is writing a book on ocd from a sufferers perspective and we are all doing whatever we can to help her. Try and join in if you possibly can. The address on facebook is - The Project: A Book for sufferers of OCD by Sufferers of OCD. Peace and faith to you all......... Pops

Sat Aug 14 2010 10:58:05 #
Cuthbert ffoliott
Moderator

Hi all -

I will join that place tomorrow. Yes, we must advertise ourselves. Perhaps we can form a pop band too? I play the guitar.
Possible names: The Checkers, or: We Hate Dirt!, or: Competent Cleaners...

Our first hit: 'Are The Lights Really Out?'

OK to end the jestering: Anne W. if you read this, please mail or PM me with the obligations I still owe you. I've been involuntarily away for quite a while (no institutionalization, mind); but it's better now.

Cheers to all and wishing you a good Sunday,

Cuthbert.

Sat Aug 14 2010 13:27:37 #
Cuthbert ffoliott
Moderator

Hi everyone -

I do have a Facebook account. I visited 'our' community pages. How can I leave behind a message, and possibly other stuff? I don't have experience with Facebook, or any other of the big social sites, at all.

Thanks in advance, Cuthbert.

Sun Aug 15 2010 14:07:59 #
poppyfields
Member

Hi Cuthbert. There should be a 'comment and like' button you can press. The comment button will open up a box so that you can leave a message and share with others..... Pops

Sun Aug 15 2010 18:39:31 #
Cuthbert ffoliott
Moderator

Thank you Pops!

Mon Aug 16 2010 7:36:24 #
Unregistered

Hi all

Just back from a week in Dubrovnik! I am pleased to say that I coped really well and only had one bad day. It is the best I have ever coped on holiday and my husband was truly delighted and proud of me.

Thanks to Pops and Joyce for taking over with the posting. I am still officially on a break but will be answering emails and PMs.

As Pops says, we would love to have more of you sign up to our FB page. We have loads of visitors - more and more each week. But we would love to have more of you join the page. The page is for relatives,carers, family members, friends and therapists as well as for us OCDers so noone knows who of us has OCD. So although your picture is there - you do not have to come out if you do not want to.....

Great to have you back Cuthbert - I will PM you.

Anne
x

Mon Aug 16 2010 8:52:33 #
Tess
Member

Great to have you back Anne, and also you Cuthbert. Sorry to hear Cuthbert that you have had a downwards slide, happens to us all, but good that you are back on the way up and keep up that wonderful sense of humour, we've missed you.

Mon Aug 16 2010 8:57:23 #
Unregistered

Hi
Just to say we have now had 26 people OCDers, carers and therapists signing up to our Face Book page. We would love to see some more of you on there.

I will be concentrating on that page once the survey has closed as it is totally dedicated to the book. So if you want to know what progress we have made, or what help we still need, just come on in and look at the page.
Don't forget this is all for chairty....

Anne the editor
Ps it is still not to late contribute. We would love small accounts from those with Pure 'O' and those with 'hit and run' OCD. We would also like poems and articles about hobbies which help you to control your OCD. Please PM me if you would like to help.

Tue Aug 24 2010 14:06:31 #
Unregistered

Dear all

When the survey is closed in two days time, I will not have time to post on the forum again. However I will be pleased to answer PMs from friends who do not have my email address.

I will keep everyone updated about progress on our FB page.

Hope to see some of you on there.

Thanks for all your support

Big thanks to Cliff, Caps and Joel.

Love
Anne

Tue Sep 28 2010 12:07:07 #