Trudy recently spoke about OCD Week, she suggested that we could all try to make at least two people aware of OCD. Another suggestion was to mention OCD if we are on other forums.
I don’t want to sound negative, but both have backfired on me badly in the past. I would just add that it might be preferable to tell strangers or at least people you don’t mind losing as friends.
Someone with OCD did say to me, years ago, that the people I ‘lost’ because of mentioning my contamination fears, were not worth knowing anyway. I agreed. However, I have had many years to think about this and I have changed my mind.
The first person to reject me was a very dear cousin, whom I had known for thirty-five years. She still is a very special person, it’s a case of her being afraid of something she doesn’t understand. Who am I to judge her, when I have fears that even I don’t understand?!
The second person who backed away from me was also a nice person. She was a nurse and I only told her because she could sense my anxiety if we met up in a public place and I erroneously believed with her medical experience she would have understanding. I briefly told her I have OCD and that I fear contamination. I never heard from her again. Excuses were always made if I phoned, the receiver abruptly put down - eventually I got the message (I‘m thick at times, it took four humiliating attempts).
Another experience has been my being ridiculed following an appearance on television, discussing OCD (back in 1997). My neighbour has cruelly made fun of my condition ever since.
Last night, I began to realize that history is repeating itself. I ‘met’ a distant cousin online who became very friendly and wanted to meet. I hate to lie, so I briefly explained this would be difficult due to my OCD. From daily contact to nothing! My husband said he is tired of my contacting people and causing ‘embarrassment‘. I received a long lecture about keeping my ’condition’ to myself, avoiding all contact with the outside world, including the computer and phone. I decided I should be banished to the attic with Grace Poole bringing my meals and guarding the locked door. Just realized, the maiden name of my great grandmother was Mason (ironically, Jane, not Bertha!).
Raising awareness is vitally important, it will even help prevent the very experiences I am referring to. However, I would now rather rely on charities, professionals and the media. I know not everyone will experience such negative responses, but I also know I am far from alone. So be careful who you confide in, it might be the last chance you have of speaking to that person. You could also end up like me, feeling totally worthless and in despair.
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