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forum Obsessive-Compulsive Disorder (OCD)

Round and round in circles............

(19 posts) (6 voices)
  • Started 1 year ago by Truddles
  • Latest reply from Truddles
  • This topic is Not a support question

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    Truddles
    Member

    I'm still being sent round and round in circles by the Consultants. I needed the CBT so I could get to the point where I could cope with admissions to investigate my epilepsy and other medical conditions. They've stopped the CBT supposedly because of the epilepsy. Now because of that one of the other consultants has discharged me not only without any treatment but without letting me know. And it's not easy trying to access the other consultants.
    Since this flare up I've had no treatment other than a part course of CBT and that's been drawn out, but whilst that is supposedly ongoing they wont provide any other help.

    I've been well and truly stitched up and feel like giving up. I'm running out of steam.

    I've tried PALS without any success, any suggestions as to how to proceed?

    Tue May 25 2010 9:37:56 #
  2. Avatar Image

    Parvez Choudhry
    Member

    Hi Truddles,

    Please don't give up. I think you are amazingly resilient and tenacious to have got this far, so I reckon you will pull through this discouragement and recover your fighting spirit again!

    Just a thought, have you tried joining a forum like this one for people with epilepsy? You could ask for advice there and you may meet someone else who has tried to tackle OCD and epilepsy simultaneously? Also the staff of an epilepsy forum may be able to lobby your epilepsy consultant.

    Meanwhile, stay tuned to this forum too so that you can keep up a 2-pronged attack.

    Hang on in there, Truddles!

    Tue May 25 2010 9:56:28 #
  3. Avatar Image

    Truddles
    Member

    Hi Parvez,

    Thanks for your reply.

    It really is one big mess with everyone passing me on saying that when the other's have done their bit. The OCD is the biggest problem as things are at the moment and the lack of treatment is denying me access to treatment for the epilepsy and my other medical conditions. It's very much a 'tomorrow' situation and as we all know tomorrow never comes.

    I have this morning spoken at length to someone re the epilepsy and how I can't access treatment because of the OCD. They didn't know what to advice but they listened and didn't blame me.

    My arms are painful from hanging on

    Tue May 25 2010 11:41:48 #
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    swan
    Member

    Hi,
    Know your situation is so horrendous for you, have you tried you own GP or is that a waste of time too. Is thier a local advocacy service for MIND in your area. Thinking of you but know that doesn't help. Know you have had to deal with this for ages.
    Teresa

    Tue May 25 2010 13:01:40 #
  5. Avatar Image


    Unregistered

    Trudy, I think it’s time to write to your PM. Has the PALS intervention come to a dead end? What about the professor, did you write to him?

    It's not my place to say this, but I feel that your epilepsy could well be the cause of your obsessions. I am so angry for you that you are not receiving the help you need to regain the independence you are desperately fighting for.

    Tricia x

    Tue May 25 2010 13:28:46 #
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    Unregistered

    I meant MP, but it might be worth writing to David (or Nick)!

    Tue May 25 2010 13:30:28 #
  7. Avatar Image

    Truddles
    Member

    Hi Teresa,
    Thanks for your support it means a lot especially as you’re not having much luck either with the professionals either. How did you get on with your social worker today?
    I’ve tried my GP without any success but have made another appointment. I’ve tried our local MIND and they weren’t any help they don’t have an advocate plus as I have been told by another Advocacy service I’m more than capable of advocating for myself

    Hi Tricia,
    I just wouldn’t know where to begin. How do you explain to an outsider exactly what’s happened, no one will believe me. Also the professionals would cover their backs just as they’ve done to PALS, either that or they just wouldn’t reply as they’ve done to each other.
    I’ve said all along that my epilepsy is definitely the trigger for my OCD and the two of them fuel each other.
    Now not only has my CBT been stopped, but I appear to have lost my Neurologist with no warning or reason and I’ve just been informed that my care coordinator (bit of a misnomer that) is leaving next week and so I’ve got to have yet another, that’ll be the fourth or fifth. But hey it’s only me, they’ve all made it perfectly clear that because I have more than one condition I’m a nuisance and they all want shot of me. Well I’m willing to oblige them on that score.

    With regards to the professor what’s the point of fighting to remain where you’re clearly not wanted. They reckon that I’m a waste of space so that’s what I’ll become. So no more trying as it’s futile if they’re only going to undo all my hard work.

    Tue May 25 2010 14:28:30 #
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    Unregistered

    I want you, Trudy! I also want you to be well, you have so much to offer others and so much living to do!

    Love, Tricia x

    Tue May 25 2010 14:46:31 #
  9. Avatar Image

    swan
    Member

    Hi,
    Appoitment with social worker went well. I agree with Tricia about contacting your mp. Dont give up.

    Tue May 25 2010 16:54:40 #
  10. Avatar Image

    Truddles
    Member

    Hi Tricia and swan,

    Swan I'm pleased that it went well with your social worker. It's about time, you've waited long enough.

    Thank you both for your support. Much as I regret having to do it, I think the time has now come to involve a third party such as my MP. They all think that it's perfectly acceptable to just keep passing me on without doing anything or to make ludicrous suggestions. They then refuse to give me the help with my OCD so that I can do the things that they want me to do. That is if I can get hold of him, an audience with the Queen would probably be easier to arrange
    I just don't know where to begin with the letter

    Yes it makes me depressed but with the support of friends I'll not give up. That's precisely what they want me to do and I'll not give them the satisfaction.

    Wed May 26 2010 12:26:09 #
  11. Avatar Image

    Truddles
    Member

    Hi Parvez,

    I took your advice and have joined an epilepsy forum. I've asked if anyone else has epilepsy and OCD and if so how do they cope and how do they manage to access appropriate treatment, though as a new member I have to wait for my post to be checked by a moderator before it can be posted.

    I do however identify more with OCD than with epilepsy.

    Wed May 26 2010 18:00:00 #
  12. Avatar Image

    Truddles
    Member

    Thanks everybody for your help and support.

    Well things continue to deteriorate and I still am as a result unable to access treatment and feel as if I'm hitting my head against a brickwall

    I've tried nice and that hasn't worked, I'm fed up with being treated so appallingly and so now think it's time to try and write the letter to the MP. Though just don't know where to begin

    Wed Jun 2 2010 15:11:24 #
  13. Avatar Image

    Truddles
    Member

    I'm thinking of getting an air bag fitted to protect me from all the brick walls I seem to be hitting in my attempts to access treatment

    Wed Jun 2 2010 18:36:04 #
  14. Avatar Image


    Unregistered

    Or a steam roller to knock a few walls down and get their attention?

    Wed Jun 2 2010 19:10:07 #
  15. Avatar Image

    Truddles
    Member

    Don't tempt me

    I've cried so much today that I can't see properly as a result it's taken me more than eight hours to do one load of washing and I still haven't got it out of the drier yet

    If only they'd listen, perhaps we'd all progress.

    Wed Jun 2 2010 19:28:54 #
  16. Avatar Image


    Unregistered

    Oh Trudy
    I'm so sorry that things aren't changing for the better, i wish i had something helpful to suggest
    You ever want to borrow my roller just let me know
    Hugs x

    Wed Jun 2 2010 19:32:43 #
  17. Avatar Image


    Unregistered

    Trudy, I really feel for you. There is nothing harder than trying to concentrate on rituals when we are in tears. I’ve sent you a message with a few suggestions. Please don’t give up the fight.

    Tricia xx

    Thu Jun 3 2010 12:40:58 #
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    trish
    Member

    HI TRUDY JST WANTED 2 SEND U SOME HUGS HOPE UR FEELING BETTER
    TRISH

    Thu Jun 3 2010 13:58:33 #
  19. Avatar Image

    Truddles
    Member

    Thanks everyone for your support, I feel a bit better today following a visit to my Pain Management Consultant. It's nice to see someone that treats me with respect, believes me and is doing his best to help. He is a rarity in the health service and I know that I'm lucky to have him
    I still have a headache, I think all the crying yesterday has triggered an attack of sinusitis

    Thu Jun 3 2010 16:19:43 #

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