OCD Action

e4vie
Member

Hey everyone,

I know this isn't the most common of topics but i thought somebody might be able to assist me.

As a sufferer myself (numbers/contamination/re-reading-you name it!) i understand it can be difficult to discuss.

I am writing a feature for university on OCD-any form. Preferably i want to concentrate on how it is for carers or those living with somebody with OCD. I would really like to get a carer and a sufferer story going but i understand this might prove difficult on the forum.

This has to be in for 8pm tomo (typical student/OCD procrastinator!) but i would be massively grateful if anybody could email me back, on here or to my email beneath, and i will send over some questions.

This WON'T be published.

Many thanks!

Ester

ester.dewey@hotmail.co.uk

Sun May 22 2011 9:00:17 #
Nimrod
Key Master

Have a look at this research. http://www.ocdaction.org.uk/files/2009/11/CarersAndFamilesSurvey-2.pdf

Nimrod

Sun May 22 2011 19:18:32 #
Tess
Member

Nimrod, thanks for this link, I tried to access it myself before replying to Ester, but without success. I went onto Cliff Snelling's profile and it says click here to access the research report but it doesn't work. This research paper is excellent and despite now being 7 years out of date needs to be easily accessible. Maybe it already is but it stumped me.

Mon May 23 2011 9:29:55 #
Nimrod
Key Master

Tess,
You should be able to access the paper by clicking on the link in my post above - it works for me. If not then from the Home page go to the Support and Info drop down menu and click on Resource Centre and there is another link under Carer and Family - it is some way down the page. It gives the paper in PDF format but if you want it in Word format PM me and I will arrange it.

The research was originally undertaken to inform the NICE OCD Guideline Development Group, on which Cliff sat, and as you say the paper is 7 years old but still represents the current situation. Regrettably little has changed in that time.

I agree the paper should be more easily accessible. It can be difficult to navigate around the website and currently we are looking at it to determine what we need to do to improve it. Having very recently held the AGM the Trustees section will be updated and this would be an opportunity to include links in each profile to areas of responsibility and interests of each trustee.

Mon May 23 2011 10:02:41 #
Tess
Member

Hi Nimrod
Sorry didn't explain myself very well. I was able to access the paper from the link in your post but I had not previously managed to find it on the general website so thanks for clarifying that. Must admit I felt when reading the summary and conclusions and some of the comments about personal experiences with the medical profession that progress had been extremely slow and the paper remains very relevant in 2011.

Mon May 23 2011 10:47:14 #
Tess
Member

PS Managed to find it now via Support and Info - Getting Support - Carers - Families. But the link on the Trustees site doesn't work, it's just in black type not a URL link.

Mon May 23 2011 10:53:29 #
Nimrod
Key Master

Thanks Tess. I can now say that we are giving updating the website and forum a high priority and intend to start work in the very near future so if you or any other forum members have any ideas and suggestions please let us know about then on the Forum needs your help thread http://www.ocdaction.org.uk/forums/topic/the-forum-needs-your-help/page/2#post-53711

Mon May 23 2011 13:53:11 #