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forum Obsessive-Compulsive Disorder (OCD)

going into hospital??

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  • Started 2 years ago by mattwords
  • Latest reply from Blueskies
  • This topic is Not a support question

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    mattwords
    Member

    I am 37 and would say I've had OCD since I was a teen. I've a 9 yr old daughter. I had a breakdown in 2006 and then relapsed last summer. Was under crisis team initially and then cpn til recently. Last few weeks I've been going rapidly downhill again, then last night I pretty much lost it totally and HAD to get outta house. Ended up at my sister's. I've spoken to a member of my local crisis team (who i met once while under crisis team and didn't like him, then this phone call he says hospital doesn't work for ocd, when i asked him what experience he had with ocd he said he'd been a nurse 27 years, I said, no how much experience with ocd and he eventually admitted he'd had very little!) Then spoke to out of hours team who said nothing they could do. Called my CMHT centre and asked to speak to the CPN I'm under. apparently she hasn't time even to call me, is v busy and thinks crisis team better to help me. Feel like she's given up on me and she's the head nurse!! Last time I spoke to her she was dismissive and impatient. I've been telling her for weeks i been going downhill, feel like this was ignored.

    Although I am terrified of going into hospital for many reasons inc fear of losing my daughter, I feel I have been trying for 4 years to get the ocd manageable, and whilst I accept I'm not great at taking meds I'm pretty tough with myself re fighting the condition but feel i no longer have the energy to do so pretty much 24 hrs a day. Last night I was standing in my living room afraid to move from a certain spot.

    What would your advice/comments on own experience be?

    Thu Mar 18 2010 12:46:21 #
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    Blueskies
    Member

    Hello there Mattwords.

    I am so sorry to hear about your situation regarding accessing services that you need.

    I remember a few years ago the waiting times for CBT, was 3 years in my area simply because there was lack of qualified CBT therapist. when I did eventually get to meet my therapist, he was still in training and studying. I actually knew more about my illness than he did, but at least he was honest. He had a family crisis himself and so left. I am still waiting for someone to take over from him. That was early part of last year.

    I did some research and found a online CBT programme , ' fearfighter' because I couldn't wait, but this has to be accessed by a doctor, as you need a password. I didn't feel it was helpful and the programme seemed very limited in the process of recovery. That ended.

    But I will say this. I did some more research about accessing services myself in my area and requested the social services directory. I contacted a service ' supporting people' who spoke on my behalf to get the services I needed. I was fed up of fighting and felt someone has to be accountable for my mental health, especially as I came into the catagory of vulnerable adults which the social services have a duty to support. I also wrote to my MP by chance and social services soon jumped to my attention.

    Supporting people can be found from your local council website and they are a voice for people who are struggling to get the services they need, often writing strong letters in your defence to get access.

    That struggle to keep fighting is exhausting because of the lack of information that professionals do not know about. It took me 3 years to get help for my spinal problem and to take the pressure of my daughter who was my full time carer, not any more.

    I now have a home help, someone to escort me to my medicals once a month for therapy at the hopsital as my treatment is a multidiciplinary approah. And I can not like you take pills, well actually I refused them for different reason.

    The irony of all this, if wasn't for my spinal injury, I wouldn't be getting the other treatments which are all holistic. My consultant knew I was suffering from OCD, suggested pills, once again , told him , no, asked me what my hobbies were. I told him , spirituality, meditation, gentle yoga,self development, accupressure and reflexology as these were my tools for self help. Well that did it. He put me forward for the above treatments which I actually begin in July.

    I thought I would never get the help and looking back it has been nearly 6 years since ringing one service after the other and gettin now where.

    Please see what services are in your area and I hope and wish you well. I know it's very hard, and believe me, I do understand what your saying.

    Pam

    Thu Mar 18 2010 14:12:11 #

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