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Can't take much more!

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    I am not sure if I am going to survive this winter and our family’s current crisis.

    I know several with OCD feel luck is not on their side, and I have to admit to having sunk into a pit of despair feeling that is indeed the case.

    My daughter has been very ill for the second time in eight weeks. I am having to face going out in the snow (apart from during her illness, I have not ventured further than my washing bucket just outside the back door for almost a year, as I have become agoraphobic). Snow and slush terrify me, so it's even harder now.

    Tried to do the shopping yesterday, no food left in the house. Wouldn’t care if it were just me, but have to consider my daughter and husband.

    Was sick with nerves prior to leaving the house, as usual, only to find car wouldn’t start. It was snowing and I was dressed in just T shirt and shorts and sandals (can’t wear any more than that). I had to do the usual decontamination with the garden hose before I could go back in for a shower, even though I didn’t make it to the supermarket.

    Got in the shower (only two weeks old) and it wouldn’t heat, so had a two hour stone cold shower.

    I can’t wear clothes in the house (other than underwear) and I am crying with the cold.

    I’ve had raging toothache for weeks and can’t face a dentist, going to have to try a DIY extraction…

    Life really isn’t worth living when OCD is severe, is it?

    I will be back if I get through this very bad patch, but to be truthful part of me hopes I don’t make it. I’m just too old for all this fear and being cold.

    My husband had the TV on this morning and the presenter of a programme was talking about travel and enjoying life. Something I have not experienced and I broke down.

    Sorry this seems very self-pitying I know, and it probably is. I try so hard not to take that attitude, but at times it just gets too much to pretend. I really don’t expect messages of sympathy. I know how hard life is for most of you. I just want to explain why I won’t be around. I’m truly sorry. I feel I have failed everyone. My family, myself and you all here.

    Sat Nov 27 2010 11:43:19 #
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    Dear Tricia,

    We have not, and maybe never will see eye-to-eye but it breaks my heart to read of the suffering that the illness that ties us together is causing you. So much so that it prompted me to sign-up on here to post this message to you (seems my old account no longer works).

    Look, I don't want to get into the old debate about treatment, but I just wanted to say that my heart goes out to you and if you ever feel that you want to challenge the OCD then there are options available to you.

    I know you had the opportunity to attend the Bethlem but because of family commitments you were unable to attend, but another unit which might be worth considering is the OCD/BDD service at the BCPU Springfield Hospital in Tooting run by Dr Lynne Drummond.

    Like I say, I don't want to get into all that debate with you again, I just wanted to post that despite our differences my heart goes out to you and I am willing you some courage and strength to fight through the cold and daughters illness at the moment.

    Take care and look after yourself where you can.

    Ashley

    Sat Nov 27 2010 13:13:53 #
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    Oh Tricia, I wish you could be free of all this, you don't deserve it, no one does. I can't even think of what to say to make you feel any better, but please know that I am here and I care! You are a wonderful person! You are so strong, even if you don't always feel it! You are not self-pitying, I didn't read anything that seemed like self-pity in your post! You're just fed up, which you are perfectly entitled to be. Please don't give up, please.

    Sat Nov 27 2010 13:25:14 #
  4. Hey come on! You're down, and that is understandable, sometimes it seems too much to carry, but you need to stop and think for a while. It seems winter is a time when a lot of us OCDers a feeling the extra strain- I haven't been on the forum long so don't know if you are on any medication or having therapy, but don't give up...just don't give up

    Sat Nov 27 2010 14:01:41 #
  5. Hi
    Tricia,
    Sometimes i don't even think those with ocd truly understand how others suffer. I am thinking of you, know how hard it is for you. Just wanted you to know that i care and am thinking of you
    Teresaxx

    Sat Nov 27 2010 15:20:24 #
  6. Like Frankie said -
    Fear is the eternal enemy. If they can keep you scared, they can keep you controlled. We too came face to face with this saboteur, and found the strength to break through and carry on. We are here as a reminder that the world is not better off without you.

    Love what you do and who you truly are. Be willing to die for it. If you are true to yourself, you can never go wrong.

    Sat Nov 27 2010 16:31:17 #
  7. Hi Tricia!

    Don't give up! Those people on the TV make it out that life is wonderful but I'll tell you now that life isn't! We're a very small community of people who suffer throughout the world and you and I and everyone on this site can beat evil. The young private who had is leg blown off can beat it. The para-oylmpic runner can beat it. The communities in Africa, which have torn families torn apart by AIDS can beat it. The old and frailed victims of the Holocaust can beat it. The young baby with cystic-fibrosis can beat it.

    And do you know, that people do beat everything they fear. Martin Luther King, he beat it, The Suffragettes, they beat it, the brave men in Flander's fields, they beat it. And hundred of people each day will do things that will overcome fear.

    What I'm saying here is that you can beat it! And do you know what, you will come out of this a stronger person.

    From the posts that I have seen on here Tricia, you are a kind and very thoughtful person. And in the times of adversity, we must keep fighting.

    Your OCD will calm down, and what I always say to myself is, 'Beyond the darkest cloud, is the lightest horizon'.

    For my Graphics GCSE I have to create a piece of work titled A Journey, and this quote hit me hard and relates to every person suffering, with whatever illness, or difficulty. 'To get through the hardest journey we need take only one step at a time, but we must keep on stepping'.

    Don't give up, the world needs you, we need you but most of all your family need you.

    Jon

    Sat Nov 27 2010 17:32:16 #
  8. Hello Tricia

    I can only really repeat what others have said here. Your life is too precious for you to throw away, to give up on. It is tragic that all of us have been cursed with OCD, when we all derserved a normal, happy life, free of it. And its more tragic when OCD affects a life as badly as it is yours.

    But like Jon said, many others have overcome great adversity, and been better for it in the end.

    You have supported so many of us on here. You supported me in the past, especially when I told you about my darkest time, with my 'cruelest torment' story. And many of others have doubtless benefited much from your help and support. This forum would not be the same without you.

    Remember that your life belongs to you, it does not belong to OCD, no matter how true that seems, or how severe it is. OCD has no rights over your life, only you do.

    So your OCD isn't done yet, but neither must you be. Your OCD is what needs to be facing its end, not you. And you can do it. You must, and you will.

    Dig deep, and you'll find the courage and faith to overcome this. Show OCD the same defiance and ruthlessness it has displayed to you, because this is your life, and your time.

    Never give up, and the best of luck to you, Tricia.

    Stevieb xx

    Sat Nov 27 2010 18:33:47 #
  9. I really don’t expect messages of sympathy.

    Tricia, I will give you as much sympathy as I like. Try and stop me.

    Seriously though - Oh heck, I don't know what to say! I never do!
    Sending you a big virtual *hug* anyway, only wish it was a real one.
    Don't give up Tricia, you've every right to be miserable now (and say so any time it helps!) but things WILL get better. Besides anything else, this particular freeze is only going to last a week or so, and winter never has and never will last for ever.

    Sat Nov 27 2010 19:55:21 #
  10. PS: Can you scare anyone from the crisis team or anywhere into coming round just for moral support? If it might help, that is.

    PPS: I occasionally find that this is the kind of time to just give up trying to keep up with the OCD, and try not to think about it. Sometimes I'm just too exhausted to care what it says. Not saying it would be the same for you.

    Sat Nov 27 2010 20:00:50 #
  11. Dear Tricia,

    I am so so sorry that things have got even worse for you, it has brought a tear to my eye just imagining what it is like for you.

    I know you have so many problems to overcome on a day to day basis and with your daughter being ill too, makes it so much harder. I completely understand what us mothers go through when we have a sick child.

    It is so cold at the moment and can only imagine how bad it is for you having to hose down outside and not be able to wear much clothing anyway.

    I know things are difficult between you and your husband sometimes but couldn't he help with the shopping? I know its not the answer but I know you havn't responded to treatment to enable you to overcome your fears and go out.

    I am wondering why you havn't got anyone from the crisis team helping you out at the moment or just someone from the CMHT helping you in general.

    I know I havn't been able to suggest anything that you don't already know, but even though things are really bad at the moment, things will improve, even just a little, to enable you to cope.

    I know when things are at their worst for me, I feel unable to carry on too, and I know that you barely get any respite from this crippling illness, but I beg you to find the strength to carry on and never give up the fight!

    We will help you to fight together and I'm so glad that you have expressed how you are feeling on the forum, because you help so many people here despite the fact that you are struggling.

    I send you so much love and support and pray that you will find the courage to carry on and I wish your daughter well too.

    Much love
    Bridget
    xxxxxxxx

    Sat Nov 27 2010 20:39:53 #
  12. Just occurred to me. Could you manage if the dentist came to your house and did it there?
    Some definitely will do that. I saw an advert recently put in our local paper by a dentist, mentioning that he could do home visits. You might ring your dentist and ask if he knows anyone who'll do that. I expect it would help the general composition a lot if you could at least get rid of the toothache.

    If you can't go private, surely there must be such a service available on the NHS. There are plenty of housebound people, and they get tooth trouble too. If you wanted to find out about that, I'd say the best bet would be to ring your local NHS trust and ask if they provide dental services for people who are housebound, and if so how you get them. (Your GP might not know, same goes for the hospital.) Probably you can find out via one of the NHS websites, too, but I don't know how you do that.

    Love from
    Wombat

    Sat Nov 27 2010 22:24:53 #
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    Hi Tricia,

    Sorry you're going through a rough patch. I really do hope you sort the clothes thing out soon as it is really freezing now and it will be worse in December. How long has your OCD been this bad? My OCD was absolutely awful last year and I'm still recovering now, but I am a hell of a lot better and I feel great (apart from my 'teen angst' as my friend calls it - I think she's winding me up) I hope you can soon feel the same.

    Feel free to rant, vent and moan as much as you like. This is what the forum's for. Sometimes, just writing your troubles down can help, even if nobody responds.

    Remember that the OCD is just a nasty bully and you need to go for it and do all the things it won't let you. You'll be terrified at first, but eventually that fear will go away.

    - Diane

    Sat Nov 27 2010 22:34:31 #
  14. Tricia,
    like the others,
    very sorry things have gotten much worse for you..
    as you know my ocd is causing havoc with me most of the time now, but i can go out
    i know how hard things are for you...i wish i could say something that would help..you help me a lot and i greatly appreciate that and respect you so much...your skill is in helping others and being there for them..this is no small thing..
    perhaps you need a break anyway because life is exhausting for you in every way... i hope you do find some rest... i think you need that greatly..
    you know i am here for you.God bless

    Sun Nov 28 2010 0:44:14 #
  15. Dear Tricia
    It's lovely to see so much support for you on the forum and I hope it helps you to get through this terrible patch you are having to endure at present. I keep thinking about you as I shiver indoors even with the central heating on and imagining what it must be like to have to hose yourself down with a garden hose before you can get inside your own home and then having to stand under a cold shower for two hours until you feel able to function. When I was that ill I just took to my bed and hid under the covers so you have my deepest admiration for soldiering on. You spend your life helping others and you are greatly loved, you are an inspiration to us all. I'm sorry there is nothing practical we can do to help but I hope you can feel the love and support surrounding you and draw strength from it.

    Sun Nov 28 2010 10:48:12 #
  16. Yeah my OCD is gone now - I'm totally cured all within 5 years and no meds.
    You need a good psychologist.

    Sun Nov 28 2010 12:51:36 #
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    I don’t know what to say. Bless you all for caring.

    Ashley, your message reduced me to tears. That’s the second time you have been there for me and I will not forget your kindness. We may well disagree on certain issues, but I know your heart is in the right place. I’ve always known that.

    Wombat, I know crisis support would be offered but I can’t have anyone in the house. Even a dentist (who used to examine me while I stood) offered to come into the house if I needed treatment, didn’t have the heart to tell him I couldn’t cope with that.

    I want to make it clear I will not end my life. I have just had enough of the cold and the fear and pray I can be released. For some reason I don’t think that’s going to happen just yet. Both my husband and daughter have accepted it would be for the best, because the torment of OCD can just be too much.

    I will be back to thank each one of you, when I am able. Before I read your messages I could feel strength emanating from somewhere and it helped to lift me. Now I realize where it is coming from.

    Love, Tricia.

    Sun Nov 28 2010 14:07:32 #
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    P.S. Just need to add something. My daughter, who is still in bed very ill, begged me to let her do the shopping. My husband would willingly do it, but he would not be able to do it the ‘right’ way. He did manage to fix my car and I got the essentials in yesterday afternoon. Didn't want it to appear he wouldn't help.

    Sun Nov 28 2010 14:12:38 #
  19. Tricia,
    your family are there for you, i know
    i pray sam recovers, moreover.... finds some brightness in life, i know its not easy, but you know... i understand
    you need some rest ,wish you and i could go on some kind of pilgramage, love you lots, paul x

    Sun Nov 28 2010 16:45:37 #
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    Dear Tricia, glad you are still holding up!

    Sun Nov 28 2010 17:12:36 #
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    Hi Tricia,

    Your life doesn't need to end to end the fear you know. You CAN beat this. OCD is a terrible, nasty illness but if there is one thing I have learnt over the past two years, it's that it can be beaten.

    - Diane

    Sun Nov 28 2010 19:07:26 #
  22. btw,
    we all know how this guy ashley ,has treated certain members of his site,
    and we who came over to here...
    needed the support
    thankfully we received it here.

    Sun Nov 28 2010 20:57:42 #
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    I don't mean to stir up any old trouble, but who is "ashley"?

    Sun Nov 28 2010 22:06:42 #
  24. Dear Tricia i am so very sorry to hear how bad things are for you my dear.
    I know how much you suffer throughout the cold weather...it must be horrendous.
    I am sorry to hear that Sam is poorly, i hope she is better soon.
    Please keep that chin up Tricia, you and i are made of strong stuff to have survived ocd for a combined 100 years, its suprising how you and i get to this rock bottom feeling but we manage to fight back, ocd cant and wont kill us "old timers".
    Love and much respect for you my dear friend,
    Brennie x

    Mon Nov 29 2010 13:12:32 #
  25. Dear Tricia i am so very sorry to hear how bad things are for you my dear.
    I know how much you suffer throughout the cold weather...it must be horrendous.
    I am sorry to hear that Sam is poorly, i hope she is better soon.
    Please keep that chin up Tricia, you and i are made of strong stuff to have survived ocd for a combined 100 years, its suprising how you and i get to this rock bottom feeling but we manage to fight back, ocd cant and wont kill us "old timers".
    Love and much respect for you my dear friend,
    Brennie x

    Mon Nov 29 2010 13:13:10 #
  26. Dear Tricia i am so very sorry to hear how bad things are for you my dear.
    I know how much you suffer throughout the cold weather...it must be horrendous.
    I am sorry to hear that Sam is poorly, i hope she is better soon.
    Please keep that chin up Tricia, you and i are made of strong stuff to have survived ocd for a combined 100 years, its suprising how you and i get to this rock bottom feeling but we manage to fight back, ocd cant and wont kill us "old timers".
    Love and much respect for you my dear friend,
    Brennie x

    Mon Nov 29 2010 13:16:28 #
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    Dear Diane, It’s been severe for most of my life (53 years) but the contamination issue and not being able to wear normal clothes, showering with hose etc, has only been a feature of it for about 20.

    The problem is, the fear doesn’t go, I wouldn’t suffer the cold like this if it did. I will face anything (for a few months) but I can no longer tolerate fear that is continuous, hence the lengths I go to in order to avoid it. Every winter is miserable, but this extreme weather is almost too much. The added worry about my daughter’s health, which has also been extreme, has just pushed me near to the edge. I suppose the incidents with the car and the shower, trivial at any other time, just felt like the straw that broke the camel’s back.

    I know you are young, and I don’t want my message to come across as being bleak and hopeless. Most with OCD will find ways of managing the condition.

    Dear Bren, I don’t know what to say. You know how I feel about you and if there was something I could do to help you I would do it. I know this year has been awful for you. I know OCD and depression have robbed you of the quality of life you so deserve. As you said we are made of tough stuff and the fight will go on…

    Dear Paul, Yes a pilgrimage sounds wonderful. Like, Bren, you and I have our beliefs and our eternal optimism. If we don’t find peace in this life we know we will in the next. However, it’s still not too late for any of us!

    Dear Tess, I have just realized that my dearest friends are from this forum, and some of you I barely knew just a year ago. OCD has very little to offer that is not of a destructive nature, but it has brought us together.

    Dear Wombat, As I said in reply to your PM, I am deeply touched by your suggestions and I will seriously look into each of them! Thank you so very much.

    Dear Helz, Thank you. I know you have had problems recently and I wish I had been able to help. I hope your fear has eased. Thank you for being such a good friend.

    Dear Nicola, I am very pleased that your OCD is so much better. Thank you also so much for your support.

    Dear Bridget, I am my own worst enemy. The CMHT said there is nothing they can do if I won’t let them in the house and won’t meet with them outside it. I do make it impossible for them. My husband is no saint (my mother disagrees with this, apparently only a saint would tolerate my extreme OCD) but he will try to help when he can, again I make this very hard for him, because usually I have to do things myself.

    You begged me to find the strength to carry on. Well, thanks to all of you here, I have found it. I truly believe you have all, with your loving, warm thoughts, reached my spirit without my even knowing. I felt this before I even read the incredible response to my rant!

    Dear Steve, I know my life belongs to me and not the OCD, but I don’t know how to turn it around. I have tried facing fear head-on, but I never learnt how to let go of it. I feel trapped, but please, as I said before, don’t think I will end my life deliberately.

    Dear Jon, I have left my message to you to last, but please don’t think I value you and your opinions less! I just wanted to give more thought to my reply. I am a strong person, Jon, and I have been told by professionals that in many ways that works against me. I didn’t understand that remark, but I was told that few would spend the whole winter bitterly cold when they had a choice of wearing warm clothes and not doing laundry outside in a bucket in their underwear etc…

    My father, who watched my OCD struggle since the age of about four, was puzzled by my inability to overcome it. As a child I once remarked I’d prefer to be blind than have OCD. This was said at a time when I was deeply depressed and after spending time with a blind lady who was incredibly happy. My father gave me quite a lecture, and I understood why!

    When I was in my thirties, and the OCD was even worse, he passed a comment about my strong will and said he could not fathom out why I was unable to overcome my obsessions. He looked back to challenges from the past and asked why I could not stop my compulsions when I faced those things. I explained it is very different. When a person has a physical injury, their brain doesn’t necessarily have an imbalance of chemicals. Their brain, when sound, is able to fight the greatest adversity. You mentioned the Holocaust. I wrote about a lady who endured that atrocity, she was an OCD patient in a hospital with a friend of mine. For her the OCD was worse…Her psychiatrist claimed that severe OCD is the worst illness known to man.

    By the way, my father had an excellent memory. A few months before he died, he spoke to me with tears in his eyes. He merely said ‘I wish you had been born blind’. I knew exactly to what he was referring and I knew he understood. Part of me, to this day, wishes he had not been able to, because the pain in his eyes will always haunt me.

    Jon, as I said to Diane, there is hope and for those of you who are very young, even more so, because even those of you who do not respond to treatment (and many of you will) will benefit from science once it has cracked this awful condition.

    Again, I cannot express how I feel. To say I am deeply touched does not even begin to describe my emotions. Thank you, every one of you!

    Love, Tricia.

    Mon Nov 29 2010 14:14:06 #
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    So sorry, Teresa and Sweeteater, I just realized my paragraphs to you didn't paste.

    Dear Teresa, I feel I have let you down at a time when you need support. I will write on your thread when I have a chance. We have known each other quite some time and I truly value your friendship.

    Dear Sweeteater, I know winter is tough for many of us and I probably will survive it again, but it's getting harder the older I become, because I am permanently cold. When I first washed down with the garden hose one January, nearly twenty years ago, I knew my behaviour was barking, but it didn't affect me so badly. Not being able to wear clothes when I do return to the house means I am never warm. The obvious answer is to emigrate to a warmer climate. I'll still appear barking, but I'll be happy!

    P.S. No therapy or medication at the moment, but have tried much of both.

    xx

    Mon Nov 29 2010 14:29:12 #
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    Thank you for being a good friend too.

    Mon Nov 29 2010 14:56:04 #
  30. Tricia
    You've been in my thoughts all day- I hope you're feeling ok. I read your post above and yes, it's true that the more strong minded you are the more you will hang onto thoughts and obsessions. Letting go, learning to think in new ways is harder; the mind doesn't want to change and if it's a strong mind it will resist all the harder. And, learning new ways of thinking takes time- if you've a daughter and husband to look after you obviously have other demands on your time. Did you gain from the therapy at all?
    All I can say right now is that you are obviously a caring person who gives encouragement to people on this forum and I hope you feel stronger soon. I understand that OCD can be beaten

    Mon Nov 29 2010 20:21:59 #

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