OCD Action

Truddles
Member

Apparently according to my Care Coordinator I am coping and I can't be ill as I'm not in and out of hospital and anyway it's only OCD I can't manage an admission for my physical problems let alone going in and out of a psychiatric ward.

The fact that my OCD is deteriorating and I'm getting no treatment either CBT or medication doesn't worry him. Aside from anything else physically and financially
I can't cope with the OCD and seizures and the demands that they impose. But apparently it's all my fault and I need to take responsibility I do, but I'm not the one who can prescribe or access treatments. I am taking responsibility by struggling on (and it is a real struggle on a daily basis) and trying to access treatment. But that's becoming increasingly difficult with the way that I'm treated by all the professionals. Also I have no cooking or access to bathing facilities, plus I'm likely to lose the support that I'm getting as the CMHT are dumping me, which means I won't be able to access the essentials such as food and hand wash etc.

I feel like nobody's child as no one wants me. I'm being passed from one professional to another with no one doing anything to help just exacerbating the OCD. I'm so depressed and frustrated

Wed Jul 6 2011 14:13:05 #
Ratwomble
Member

Trudy,

That's grim. At least you've got us.

Hugs

David

Wed Jul 6 2011 15:03:01 #
Truddles
Member

Thanks David

You've been a true friend throughout this last upset and I have really appreciated your support.

Trudy

Wed Jul 6 2011 15:10:20 #
overthinker
Member

omg thats disgusting i cant believe some professionals think they are professionals when they clearly have no idea on how to go about there profession and providing the right treatment if that makes sense they are cbt self help books you could give them a blast ? i got one through today on overcoming obsessive thoughts just to anxiety filled to read it today going to get a good nights sleep etc if you ever want to talk you can always mail me as i use to have that type of ocd it use to be from switches and plugs to locking and picking every tiny bit off the carpet floors i will reply to your mail in a moment staystrong

Wed Jul 6 2011 15:38:50 #
Truddles
Member

Thanks their behaviour has been appalling.

Wed Jul 6 2011 21:49:58 #
Tess
Member

Hi Trudy
I'm really sorry you're so upset and I think this illustrates only too clearly one of the big problems we find ourselves up against.
But apparently it's all my fault and I need to take responsibility
As I recall, having checked the toilet for you at the OCD conference to make sure you hadn't left anything behind, part of your OCD is all about problems with taking responsibility and needing others to help you, so as I see it the professionals are just putting the blame back on you because they haven't been able to treat this aspect of your OCD successfully. Their answer seems to be to push people into a corner and let them swim or sink and it worries me greatly because this is a disgraceful way to treat people who are ill and vulnerable.

Thu Jul 7 2011 10:08:41 #
Truddles
Member

It’s not my OCD they’re talking about it’s responsibility for things that I have no control over, such as accessing treatment for all my conditions including the OCD and getting the repairs done. They're blaming me for their own ineptitude and I have a professional witness to this.

That incident you mentioned occurred on the first day that I’d been out alone for over a year, it was also the first time in years that I'd been amongst strangers with no one that I knew other than those that I'd spoken to on the forum, understandably I was extremely anxious. But I don’t do that any more and apart from having help getting in and out of the house and shopping (more to do with my epilepsy and physical conditions) I do everything myself and don’t defer to others or seek reassurance - there's no one to defer to or seek reassurance from. Some of the daily tasks take me hours to accomplish but I do them without help.

They haven’t attempted to treat my OCD successfully or otherwise other than a token few sessions of CBT. I haven’t had access to medication and the CBT that I’ve had could be written on a postage stamp. They won’t treat the OCD because of the seizures and they won’t treat the seizures because of the OCD and as for the physical problems they use both the OCD and the seizures as the reason for not being able to treat them. I receive no encouragement only overt criticism and empty promises. The lack of treatment is causing a serious decline in my physical health and exacerbating the depression and seizures not to mention the OCD.

Thu Jul 7 2011 17:38:16 #
Wombat140
Member

Nothing for it, you'll have to nip down to the shops and get a new Care Coordinator. The old one can go in Soxon's skip.

Seriously though, this'll never do. Have you tried getting on to your MP? I understand they can put pressure on the NHS people if necessary. I'd imagine it'd be better to go and buttonhole the MP in person at his/her next surgery, if you can (are you still fairly OK with going out?) If not, just do the best you can. It's an MP's job to sort out this kind of thing when nobody else can. I think you've tried just about everything else!

I'm really sorry you're having such a struggle in the meantime. Saying you're not taking responsibility is certainly adding insult to injury! It's a load of rubbish, remember - you're obviously doing all anyone could, it's just a shame no-one else is living up to it. Forum's always here if you need sympathy (though I might not be, my broadband's playing up too!)

Big hug from Wombat

Thu Jul 7 2011 20:14:53 #