http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this It's Time to Act. OCD Action provides support and information for people affected by Obsessive Compulsive Disorder. Mon, 21 May 2012 16:38:59 +0000 http://bbpress.org/?v=1.0.2 q http://www.ocdaction.org.uk/forums/search.php http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this/page/2#post-40033 Tue, 30 Mar 2010 10:14:50 +0000 Nimrod 40033@http://www.ocdaction.org.uk/forums/ <p>Dear all, we are very proud of this forum and the way that it provides vital support and comfort to many people. OCD Action and the forum moderators’ role is to help create the atmosphere of a supportive community on this forum whilst trying not dictating conversations or censoring comment. </p> <p>It seems that a number of forum users have found some of the posts in this topic very difficult and that this thread is not helping to foster the sense of community support. For this reason we have decided to lock this thread and prevent further posting on this topic. I hope that you understand. </p> <p>Caps </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this/page/2#post-40001 Sun, 28 Mar 2010 09:21:45 +0000 Anonymous 40001@http://www.ocdaction.org.uk/forums/ <p>Dear Bingo<br /> I am so sorry that this thread has caused you upset, sadly it is not difficult to stir up a hornets nest on this forum and it has been the cause of a number of excellent members leaving. I feel sad that you feel you have to try to explain yourself and it has made you search your own conscience and experiences simply because you tried to help someone else. I find myself increasingly in the same situation on this forum. I thought your original post was brilliant, it made perfect sense to me.<br /> All of us have our own experiences and many of us have learned our own coping strategies which we would like to share in order to try to help others. Like you, I went through the NHS system at a time when little was known about OCD and it's treatments, and indeed several times in more recent years until I found the right way for my own stability. I believe that you have a lot to offer to this forum, I used to think I had too but I have become weary and depressed with all the in-fighting and am on the point of giving up as I have to try to remain well and stable. I can honestly say this forum and it's associated PMs has given me more grief in the last couple of months than all my years of psychiatric face to face treatment.<br /> Sorry to sound so depressing but as you can see the arguments on this forum have brought me this low.<br /> In answer to your original question, I can only speak for myself but I understood you perfectly. The upset is not because of a misunderstanding or lack of clarification but more because you hit the nail on the head and that can be very painful and provoke intense responses. Best wishes, Joyce </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this/page/2#post-39998 Sat, 27 Mar 2010 22:18:54 +0000 bingo 39998@http://www.ocdaction.org.uk/forums/ <p>I seem to have stirred up a hornets nest leading to a great misunderstanding. The question is did readers not understand me or did I not explain myself clearly? Before I offer an answer to that let me first say that if I have upset anybody, and it seems that I have, due either to their lack of understanding or my lack of clarification then I am very sorry. Please accept that it was my intention to be supportive and constructive.</p> <p>Let me explain that I suffer from a version of Pure O with undertones of Tourettes. Basically this means that things come out either orally or in writing spontaneously which is probably an extreme out of control version of the popular expression “calling a spade a spade” (I accept that this term may upset those who are unaware of the problem or use it in a different way). I have other conditions as well.</p> <p>Next, I recognise the situation Trudy finds herself in. This is because I have been in that same situation much as she says with the lack of communication between consultants causing all sorts of difficulties and this led me to believe that they were all in collusion with each other and lying to me. With hindsight I now know that was not the case which is why I cast doubt with the situation Trudy portrays. I have Pure O with T and I have other conditions, although not the same as Trudy. So I have been there done that – and it is not a happy place. </p> <p>This was long ago at a time when the NHS could still claim Crown immunity from prosecution and complaining was to no avail. Things, thankfully, are so much better now. However, as mentioned in an earlier post, when I was so exhausted and could see no prospect of improvement or of any chance of having any semblance of a normal life I effectively gave up. But what did I give up? I just let things go the way they went. This meant that I did what the medics suggested, albeit rather uncaringly. On reflection I think I was so exhausted and fed up with everything that what I gave up was the obsessiveness. Things that were impossible for me to do or allow to happen I did and allowed without resistance, and I did them because I no longer cared, or to put it another way, I lost the stubbornness to resist. It worked for me and although I am by no means cured and there is still a long way to go I now have some semblance of a normal life and I hold down a demanding and challenging job. </p> <p>This is why I think we have it in us to overcome enough of this dreadful condition to give us a chance of a life. Although I don’t know Trudy and have never met or spoken to her, I have seen her at the OCD Action conference in London earlier this year and from that fleeting observation I believe she, as we all have, has it in her to look inward and to trigger that something to either gain some control or to allow something to happen to start to overcome the seemingly insurmountable difficulties.</p> <p>Finally I hope that Trudy will read this, and if she is off the forum I should be most grateful if anyone would be so kind as to pass it on. And Trudy, if my words offend please consider that I may not be fully in control of how they come out, so can I ask that you give a flexible interpretation on the basis of “you know what I mean”. I truly intend to be supportive and by outlining my own experience hope to give encouragement and support to you and others.</p> <p>Take care,<br /> Bingo </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this/page/2#post-39982 Sat, 27 Mar 2010 16:38:21 +0000 Anonymous 39982@http://www.ocdaction.org.uk/forums/ <p>If a person can’t express their pain, even suicidal thoughts, on here, where can they? (other than the Samaritans, and as good as this service is, it cannot give advice). Many health care professionals do not want to listen to a person who is that desperate. How far should we take this? I am aware that some symptoms of OCD are very distressing and disturbing to others. Also, when a person writes about a particular obsession or compulsion, others may be distressed because they latch onto it themselves. Almost anything we write can cause distress. We could just chat about what TV we watch, but I’m sure that too could lead to controversy!</p> <p>I had a close relative who committed suicide. I know how painful this is, but I feel the more we speak out the better. Perhaps if people were not made to feel guilty for feeling suicidal they would speak more openly, and just maybe some would be saved. Would we wish to drive poor Trudy to an even greater despair and a suffering in total silence? </p> <p>Bingo, I read every word of your messages. I’m not sure, however, if you read mine. I did not say that all consultants lie or mislead. I wrote ‘Unfortunately it does happen’! I went on to say I lost faith in their integrity because of a certain well-known psychiatrist. I have other reasons, and I could name a couple of doctors, but what would be the point, you wouldn’t know them! I am sure the majority are decent and honest, but no profession, whether it be the priesthood, teaching or psychiatry, is above reproach and sadly there are dishonest people in all walks of life.</p> <p>Your ‘encouraging words’ were noted. I never reply to a post without ‘reading on’. I felt they were a little hollow after your initial comments. It sounded as though you doubted Trudy’s honesty and you appeared to be basing your view on your personal experience of the NHS. Sadly, we don’t all experience the same!</p> <p>Trudy, try to hang in there, my dear. This has been the most awful time for you. </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this/page/2#post-39981 Sat, 27 Mar 2010 13:53:30 +0000 swan 39981@http://www.ocdaction.org.uk/forums/ <p>Trudy,<br /> Aplogies for not applying to this thread before. Im not surprised you are feeling so bad. I have comples diagnosis epilepsy ocd and depression like yourself. However i know I am lucky that my epilepsy does not cause you the same issues as yours does. Bingo I know from experince that consultants do not speak to each other ie I have a nuerologist and psychiatrist. I have requested a change of nuerologist. Even within the same area treatment can change. I had a really good social worker then a really bad one who decided I didnt have ocd even though pyschiatrist knew I did. I now again have a good social worker but have to change because she only does short term pieces of work. What Im trying to say is that Trudie is having really bad time and really could do with someone supporting her. Trudy have you approached your local Mind for advocacy support, ocdactions service is knew so they are still training people up. Mind may also help with a referral to a cpn or social worker. Take care pm me if you want to. </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this/page/2#post-39979 Sat, 27 Mar 2010 13:42:43 +0000 truddles 39979@http://www.ocdaction.org.uk/forums/ <p>Don't worry I wont be posting again, but many thanks to those that have posted to offer me support. It has been appreciated. </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this/page/2#post-39978 Sat, 27 Mar 2010 12:01:35 +0000 Anonymous 39978@http://www.ocdaction.org.uk/forums/ <p>I have been reading this thread and not posting but I have decided to come in on it because I am getting very upset by it.<br /> In my opinion Bingo has given some very sensible and caring responses. This is a public forum for the purpose of helping people who are suffering from a deeply distressing condition. As a leader of a support group I want to be able to introduce people to the forum as a place of information, support, empathy and understanding and I am losing confidence that I can do this. Yes, OCD for many of us comes hand in hand with depression, sometimes suicidal, and we need to express these feelings. Some of us may well have had bad experiences with doctors and health professionals, others will have sadly had personal experience of suicide. These are very serious, distressing issues and before posting on this forum each one of us needs to think of those who will be reading our posts and the possible knock-on effects on others. </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this/page/2#post-39964 Fri, 26 Mar 2010 21:17:27 +0000 Anonymous 39964@http://www.ocdaction.org.uk/forums/ <p>Please, please, please don't do anything rash!!! &lt;img src=&quot;http://www.ocdaction.org.uk/forums/bb-plugins/bb-smilies/default/icon_cry.gif&quot; title=&quot;:cry:&quot; class=&quot;bb_smilies&quot; /&gt; I don't want you to give up. I feel so useless, I want to come and help you somehow but I don't know what to do. Please PM me or something and keep talking, let us know you're still here. Please don't go. &lt;img src=&quot;http://www.ocdaction.org.uk/forums/bb-plugins/bb-smilies/default/icon_sad.gif&quot; title=&quot;:(&quot; class=&quot;bb_smilies&quot; /&gt; </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this/page/2#post-39963 Fri, 26 Mar 2010 21:10:41 +0000 truddles 39963@http://www.ocdaction.org.uk/forums/ <p>I've had enough and feel that it's time to call it a day. I've asked until I'm blue in the face for help and got nothing. I've had some CBT and that's been stopped so the other Consultants now wont do anything. I've told the Team that I can't cope that I'm suicidal and they're refusing to take any notice. When I told them I'd had enough and was going to end it all the person I saw tonight said she hoped I'd have a good night and left. &lt;img src=&quot;http://www.ocdaction.org.uk/forums/bb-plugins/bb-smilies/default/icon_sad.gif&quot; title=&quot;:(&quot; class=&quot;bb_smilies&quot; /&gt; What was it that I did that was so wrong all I wanted was help and I got nothing. If they wont help to stop it then I will as I can't cope. </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this/page/2#post-39955 Fri, 26 Mar 2010 13:56:20 +0000 truddles 39955@http://www.ocdaction.org.uk/forums/ <p>Other to add that I'm still going round in circles with nobody listening, as was the case with the meeting today. They're quite happy to work with the wrong information and to continue sending me from A to B to C and then to blame me for seeing so many Consultants &lt;img src=&quot;http://www.ocdaction.org.uk/forums/bb-plugins/bb-smilies/default/icon_sad.gif&quot; title=&quot;:(&quot; class=&quot;bb_smilies&quot; /&gt; I can't do any more than I have short of getting a medical degree and the length of time this has taken it would have been the quicker option &lt;img src=&quot;http://www.ocdaction.org.uk/forums/bb-plugins/bb-smilies/default/icon_neutral.gif&quot; title=&quot;:|&quot; class=&quot;bb_smilies&quot; /&gt; </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this/page/2#post-39936 Thu, 25 Mar 2010 22:41:26 +0000 truddles 39936@http://www.ocdaction.org.uk/forums/ <p>I'm at a complete loss for words &lt;img src=&quot;http://www.ocdaction.org.uk/forums/bb-plugins/bb-smilies/default/icon_cry.gif&quot; title=&quot;:cry:&quot; class=&quot;bb_smilies&quot; /&gt; </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this/page/2#post-39928 Thu, 25 Mar 2010 21:58:54 +0000 bingo 39928@http://www.ocdaction.org.uk/forums/ <p>Beth,</p> <p>First, Joel, who is the boss at OCD Action, did not say that OCD Action is unable to help further. He said that they have to ration resources. The charity has limited resources (the accounts can be seen on this website) and has to share them around among various services, such as this forum, which are provided at significant cost to the charity but are given free to those who use them. The services are provided by volunteers giving their time free and from income from membership fees and donations. If you want to donate to boost resources there is a spot on this website telling you how to do it.</p> <p>To say that consultants deliberately mislead and lie are very strong words. Do you have evidence, and if so will you share it with us? Yes, there is a proven case of <u><strong>one</strong></u> psychiatrist plagiarizing anothers' work but that does not mean he has lied to his patients or falsified notes. Also, the fact that one psychiatrist has done something wrong does not mean that all the others or a majority of them lie or do other wrong things. Obviously mistakes are made but we are discussing deliberate lying and falsification. So why assume that because one psychiatrist did something wrong that the others must also deliberately do the wrong things you accuse them of? That is just as illogical as assuming that because one forum contributor makes a statement then it must be beyond doubt and therefore all consultants are up to no good.</p> <p>Finally, I know what I said in my fourth paragraph may have been seen as hurtful <em>at that stage</em> but you should have read on as you clearly missed my encouraging words offering hope and a possible opportunity.</p> <p>Bingo </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this/page/2#post-39915 Thu, 25 Mar 2010 17:33:29 +0000 truddles 39915@http://www.ocdaction.org.uk/forums/ <p>Hi Beth</p> <p>Thank you for those kind words, I do try to contribute as much as I can it's just in the past few weeks I've found it so difficult partly because I'm so depressed and partly because the lack of sleep is finally taking it's toll both physically and mentally and the epilepsy is having a field day, I just wish I could go to sleep and never wake up &lt;img src=&quot;http://www.ocdaction.org.uk/forums/bb-plugins/bb-smilies/default/icon_cry.gif&quot; title=&quot;:cry:&quot; class=&quot;bb_smilies&quot; /&gt; </p> <p>It's not easy when you've a complicated medical history and none of the Consultants are doing anything other than pass you on to the next. I can't with the best will in the world sort out the OCD whilst the epilepsy is so uncontrolled. And as they've stopped my CBT I now can't get the epilepsy sorted, as my OCD means that at the moment I can't manage an admission. I've worked hard to try and sort out my OCD but there are limits as to what I can manage with lapses of conciousness because of the epilepsy neither is it easy when you can't see properly - another problem that they wont address &lt;img src=&quot;http://www.ocdaction.org.uk/forums/bb-plugins/bb-smilies/default/icon_sad.gif&quot; title=&quot;:(&quot; class=&quot;bb_smilies&quot; /&gt; </p> <p>None of the Consultants listen to me, it doesn't matter what I tell them they just write what they want and so my notes are becoming a complete work of fiction. You can't even get them to correct their mistakes. I have never lied to any of them, even though some of my symptoms especially those relating to the epilepsy sound really bizzare and so I don't appreciate them misrepresenting what I say, ignoring me or lying to me. &lt;img src=&quot;http://www.ocdaction.org.uk/forums/bb-plugins/bb-smilies/default/icon_sad.gif&quot; title=&quot;:(&quot; class=&quot;bb_smilies&quot; /&gt; </p> <p>It is deliberately misleading when they are misrepresenting what you tell them, especially when you tell them so and still they persist. </p> <p>I was sent back to the hospital &lt;img src=&quot;http://www.ocdaction.org.uk/forums/bb-plugins/bb-smilies/default/icon_evil.gif&quot; title=&quot;:evil:&quot; class=&quot;bb_smilies&quot; /&gt; that triggered my OCD years ago supposedly for treatment for my epilepsy and OCD and although I went with an open mind they've managed to ruin my life again. Basically if you don't fit into any of their pet theories they try to fit you into their theory and if you don't they don't want to know.</p> <p>Any one know how to get an advocate before I end up falling down during a seizure and breaking my neck &lt;img src=&quot;http://www.ocdaction.org.uk/forums/bb-plugins/bb-smilies/default/icon_question.gif&quot; title=&quot;:?:&quot; class=&quot;bb_smilies&quot; /&gt; &lt;img src=&quot;http://www.ocdaction.org.uk/forums/bb-plugins/bb-smilies/default/icon_neutral.gif&quot; title=&quot;:|&quot; class=&quot;bb_smilies&quot; /&gt; </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this#post-39911 Thu, 25 Mar 2010 14:27:07 +0000 Anonymous 39911@http://www.ocdaction.org.uk/forums/ <p>Trudy I have read this thread with dismay. I have often looked at your messages and am aware of how much you contribute when others are in need and distressed. </p> <p>I am sorry that OCD Action is unable to help you further. Have you considered contacting the other British charity, OCD UK? I believe their administrator works tirelessly in this area.</p> <p>Bingo, You may never have encountered consultants who deliberately mislead, or even lie, but that doesn’t mean Trudy is making this up. Unfortunately, it does happen. The fact that a leading psychiatrist would plagiarize another doctor’s work makes me lose faith in their integrity! I would imagine your comments must have felt like another kick in the teeth for someone who is obviously at breaking point. Please consider that words can hurt and hurt very deeply. </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this#post-39906 Thu, 25 Mar 2010 09:23:48 +0000 Joel 39906@http://www.ocdaction.org.uk/forums/ <p>Hi all, I just want to say something about where we are with the advocacy project as I can see that this has come up in the posts here - </p> <p>In everything that we do we need to ask ourselves how can we help the most people in the best way possible within our limited resources. This means that sometimes we need to restrict and ration out the help that we give. At present we have many more people coming to our advocacy service than we can cope with and so we are limiting the help we give whilst we train up more advocacy volunteers which will eventually enable us to take on more cases. This will be a couple of weeks and I think that this is fair and the right way forward.</p> <p>It is also worth saying that one of the reasons that the service is so widely used is that we are being successful in lots of cases, helping people keep their jobs, stay in housing and fight discrimination. We are making real and substantial changes in people's life. We think that the advocacy service is a significant step forward and, rest assured, that we are working very hard to raise income to hire more advocates. I want us to be able to help everyone - and we will get there - but it will take time.</p> <p>joel </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this#post-39901 Wed, 24 Mar 2010 23:52:19 +0000 Anonymous 39901@http://www.ocdaction.org.uk/forums/ <p>I'm sorry things are so bad for you, Trudy. &lt;img src=&quot;http://www.ocdaction.org.uk/forums/bb-plugins/bb-smilies/default/icon_sad.gif&quot; title=&quot;:(&quot; class=&quot;bb_smilies&quot; /&gt; I wish I could do more to help you. </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this#post-39900 Wed, 24 Mar 2010 22:41:29 +0000 truddles 39900@http://www.ocdaction.org.uk/forums/ <p>Because of the mess that I find myself in I'm really depressed and so haven't been posting as much as I usually do. So I apologise for not keeping in touch with people but I'm finding life really difficult at the moment. It's not easy trying to string a sentence together when my thoughts are so intrusive. They just wont stop and with no help but plenty of aggravation from the Health Professionals the thoughts, obsessions and compulsions are spiralling out of control. </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this#post-39894 Wed, 24 Mar 2010 21:52:10 +0000 truddles 39894@http://www.ocdaction.org.uk/forums/ <p>I’m sorry but I didn’t ask for a critique of my post. Everything that I have written is true and whether people believe it or not is up to them, but please don’t infer that what I’ve written isn’t true. It’s not my fault that I’m being passed from pillar to post with no treatment other than a part course of CBT. </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this#post-39889 Wed, 24 Mar 2010 18:05:17 +0000 bingo 39889@http://www.ocdaction.org.uk/forums/ <p>Hey Trudy, hang in there as basically it can only get better.</p> <p>Some of what you say has got me baffled. If I have understood you right (and I have read all of this thread) you are saying that nobody will do anything to help you for any of the conditions you have. I find that difficult to take as it doesn't sound like my experiences of the health services in the UK (I believe I am correct in thinking you are in the UK) as I also have multiple health problems and have found that at least one medic somewhere will do something, including geeing the others up, even if only to get you off their books - in the best possible way. </p> <p>You say that some consultants are making inaccurate notes and that other organisations are telling a pack of lies. I don’t buy that. Mistakes, maybe as they do occur, but you can ask to have the notes corrected or if the medic won’t agree to a correction (because he thinks his notes are right) then you can ask to have your own version appended to the notes. As for CMHT/PALS lying, why would they do that? The notes are verifiable and would have audit trails so it would be a bit risky to lie.</p> <p>You also say that Jude from OCD Action has given you a letter for the consultant. OK, so if the consultant refused to take it there is nothing Jude can do about that. However, he would risk getting into trouble if he refused to accept a letter addressed to him (or an open letter) from another professional. But you go on to say <em>"So then why give me the letter of authority if there was no intention of using it to establish why I'm being treated so badly?"</em> Surely Jude did not give you a letter if she had no intention for it to be used? You also say you have sustained many injuries and still no one helps. Are you saying that they are also refusing to treat physical injuries? Again, what you say about OCD Action not taking on new cases doesn't make sense as you are not a new case because as you have already said they have already done something for you by writing a letter. And that does not sound like the way OCD Action responds to people as I have always found them very sympathetic even if they can't do anything.</p> <p>OK, so by now you are fuming at me and I can understand that as I found myself in what I thought to be a similar situation years ago. It seemed like a vicious circle, something had to be done about problem B before problem A could be fixed, but problem B couldn’t be fixed until problem A had been fixed!</p> <p>I was at the centre of all this just sitting there in a fix and wondering not what to do for myself, but who was going to do what for me. The trouble was that everywhere I looked there was an insurmountable problem that had to be overcome before the next, also insurmountable problem could be tackled. Something had to change and that something was me, or to be more correct the way I looked at things especially my expectations. When things are bad they just seemed to get worse and worse with that small black hole getting smaller and tighter by the hour, so something had to go. In what I thought at the time to be desperation I just gave up or dropped, due to the sheer exhaustion of it, some of my expectations and firmly entrenched beliefs about my plight and just let things take their course. So a bit at a time I just accepted what the doc said and tried what he asked me to do. Eventually problem A was reduced enough to enable them to tackle problem B and things slowly, very slowly got a little better and gradually the other things could be looked at. I am not cured but to a large extent things are manageable and I have some semblance of a life although there is a long way to go.</p> <p>I don’t know if this will work for you so why not give it a try? But it’s not a two minute fix, or maybe even a fix at all, so don’t give up. I know you say you are too tired to care or to carry on but you owe it to yourself to have a go.</p> <p>And we are all here for you.</p> <p>Take care,<br /> Bingo </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this#post-39887 Wed, 24 Mar 2010 16:27:43 +0000 truddles 39887@http://www.ocdaction.org.uk/forums/ <p>Hi Andrea,</p> <p>All my life I've put others first and always considered them, now it's time to put me first. I have no quality of life and if I can't access the treatment that I need then I have to do what is best for me. And without treatment then there is no point carrying on. I'm sorry if it offends you but I've worked hard to keep going and it's making me ill and I'm too tired to either carry on or care any more.</p> <p>Hi Bridget,</p> <p>Thanks. What makes it all the harder is knowing that all the conditions that I have can at least be managed even if they can't be cured. But in order to do that the doctors need to actually intervene and do something instead of leaving me to deteriorate. They're not doing anything. What happens if I fall down the stairs again and instead of just bruising my shoulder I break an arm, a leg or worse break my neck? I've sustained so many injuries and still no one helps.</p> <p>Yes, I've tried contacting Jude and she wrote a letter for me to take to the consultants and a letter of authority so that they can speak to her. That hasn't worked, one of the consultants refused to take it and when I rang asking OCD Action what to do next I was told she wasn't taking on new cases. So then why give me the letter of authority if there was no intention of using it to establish why I'm being treated so badly?</p> <p>I was even told that I was more than capable of advocating for myself. That's as maybe but if they're all ignoring me I could be the world's best advocate and it still wouldn't work.</p> <p>I'm nobody's child as no one wants to help me. &lt;img src=&quot;http://www.ocdaction.org.uk/forums/bb-plugins/bb-smilies/default/icon_cry.gif&quot; title=&quot;:cry:&quot; class=&quot;bb_smilies&quot; /&gt; </p> <p>Trudy x </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this#post-39885 Wed, 24 Mar 2010 15:39:15 +0000 aishah 39885@http://www.ocdaction.org.uk/forums/ <p>Hi Trudy, </p> <p>I am so sorry that you are suffering like this at the moment. It must be so hard having so many problems at the same time and no-one helping you. I am really disappointed with your health care professinals, especially the Mental Health Team and CADATS.</p> <p>Have you got in touch with Jude, the OCD Action advocate, she must be able to<br /> help surely. When your voice is not being heard by so many people, then a second voice is needed and I'm sure the OCD Action advocate will be able to help. especially as the situation has now become so urgent.</p> <p>Let me know how you get on.</p> <p>Bridget<br /> xx </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this#post-39881 Wed, 24 Mar 2010 12:59:07 +0000 mama 39881@http://www.ocdaction.org.uk/forums/ <p>Trudy,<br /> Killing yourself is not only not a solution, it is not fair to the people who care about you. Do you think it would cause no ripple effect in emotions for those that struggle with death and their own purpose in life? I think you need to stop and make a checklist of all your positives even WITH ocd and epilepsy etc. I had to come to a place in my own mind where I realized that just because I struggle with OCD does not mean I am 'less than' or a 'burden' on my loved ones...even if they insisted on telling me otherwise...its simply not true...we have an inner beacon of strength that some people cant handle, but despite OCD, you let that light in you shine Trudy...you are powerful, and your inner beauty strengthens others...let it shine my dear...your weaknesses and infirmities are just a part of what you deal with...they do not define who you are.. </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this#post-39879 Wed, 24 Mar 2010 12:48:33 +0000 truddles 39879@http://www.ocdaction.org.uk/forums/ <p>I've had enough and can't cope and as no one is willing to help it leaves me no alternative. Thanks for listening to me though. </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this#post-39875 Wed, 24 Mar 2010 11:05:21 +0000 truddles 39875@http://www.ocdaction.org.uk/forums/ <p>I've tried all you suggested and no one will help. None of the consultants will speak to me, I've tried ringing, emails and letters, the CMHT are making the situation worse, social services don't want to know because I'm with the CMHT, if you speak to PALS they just get told a pack of lies. I can't get an advocate and I've tried everywhere. </p> <p>I can't get help from anyone so perhaps I will be better off dead. Then and only then perhaps they'll all listen. </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this#post-39871 Wed, 24 Mar 2010 10:37:39 +0000 Blueskies 39871@http://www.ocdaction.org.uk/forums/ <p>Trudy, I really do feel you've been treated unfairly. I wrote in a post, I think ,' going into hospital some suggestions there. supporting people services from your local council and writng to your MP. It's very unfair to be left on your own to deal with all these health issues. Please have a look at your councils website if you can, and also the social services directory has lots of services that you could access as well to find a voice to represent you.</p> <p>I always find it in the past a big struggle to fight for our rights, and no one who hasn't been through it will never know how that battle to get help whilst struggling with illness or mental health issues can make our issues get worse.</p> <p>I hope SOMEONE will listen to your needs!!! </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this#post-39863 Tue, 23 Mar 2010 22:54:24 +0000 truddles 39863@http://www.ocdaction.org.uk/forums/ <p>Thanks for your support, it's not easy when no one will do anything and both the OCD and the physical problems continue to get worse. There are several consultants involved and not one of them has done anything to help, by inaccurate notes all they are doing is making an already bad situation worse &lt;img src=&quot;http://www.ocdaction.org.uk/forums/bb-plugins/bb-smilies/default/icon_cry.gif&quot; title=&quot;:cry:&quot; class=&quot;bb_smilies&quot; /&gt; </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this#post-39856 Tue, 23 Mar 2010 19:09:35 +0000 swan 39856@http://www.ocdaction.org.uk/forums/ <p>Hi,<br /> Having more than one thing to deal with is really hard. Do you have a pyschiatrist in your area who also specialises with epilepsy. They used to in my area but dont any longer.<br /> Thinking of you </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this#post-39854 Tue, 23 Mar 2010 18:49:52 +0000 mama 39854@http://www.ocdaction.org.uk/forums/ <p>Trudy,<br /> there are doctors on the OCD support list on yahoo and there are resources there in England for people who can help you and advocate for you. I'm sure you have looked in to these things, but I suggest you look into something like that again. We are never too old to be worth something just like we are never too young to understand or we're never too old to learn something new. You have much too offer...its just another cycle of depression for you...what goes down will come up also...its a two way roller coaster...just hang on through the down and you'll find yourself climbing again soon.<br /> Andrea </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this#post-39852 Tue, 23 Mar 2010 17:32:22 +0000 truddles 39852@http://www.ocdaction.org.uk/forums/ <p>Well it's clear that there is no way out of the mess that I'm in. The doctors all continue to pass the buck and I still have no treatment for any of the conditions. </p> <p>I can't have the epilepsy or the other physical conditions sorted until my OCD has got to the point where I can manage an admission, but my CBT has been stopped. And none of the consultants are talking to me as they're all waiting for each other to do something. I'm completely stuck.</p> <p>The OCD and the physical conditions continue to deteriorate and I can't get <u>anyone </u>to help me. </p> <p>I've really made an effort and refuse to carry on this way but I feel I've reached the end of the line - I'm sorry but I'm too old, depressed and tired to go on.</p> <p>I'm sorry but the situation I now find myself in is intolerable and I can no longer cope and don't want to go on. </p> http://www.ocdaction.org.uk/forums/topic/i-cant-see-a-way-out-of-this#post-38545 Tue, 23 Feb 2010 00:06:10 +0000 truddles 38545@http://www.ocdaction.org.uk/forums/ <p>Thanks everyone for your support it's much appreciated &lt;img src=&quot;http://www.ocdaction.org.uk/forums/bb-plugins/bb-smilies/default/icon_smile.gif&quot; title=&quot;:-)&quot; class=&quot;bb_smilies&quot; /&gt; <br /> I really do feel like jacking it in as I'm getting nowhere fast &lt;img src=&quot;http://www.ocdaction.org.uk/forums/bb-plugins/bb-smilies/default/icon_cry.gif&quot; title=&quot;:cry:&quot; class=&quot;bb_smilies&quot; /&gt; But I suppose I'll just have to keep going round in ever decreasing circles until I can get someone to do something &lt;img src=&quot;http://www.ocdaction.org.uk/forums/bb-plugins/bb-smilies/default/icon_confused.gif&quot; title=&quot;:?&quot; class=&quot;bb_smilies&quot; /&gt; </p> <p>Up to my eyes with work at the moment as I'm so slow because not well and so I'll try and catch up with everyone tomorrow. If I don't try and get to bed soon I'll end up asleep at the computer and fall off the chair like I did a couple of days ago &lt;img src=&quot;http://www.ocdaction.org.uk/forums/bb-plugins/bb-smilies/default/icon_lol.gif&quot; title=&quot;:lol:&quot; class=&quot;bb_smilies&quot; /&gt; </p> <p>Thanks </p> <p>Trudy </p>