BDD Common
Question and Answers

Q:
What are the most common
complaints in BDD ?
A: Most sufferers are preoccupied with some aspect
of their face and often focus on several body parts. The most
common complaints concern the face, namely the nose, the hair,
the skin, the eyes, the chin, or the lips. Typical concerns are
perceived or slight flaws on the face or head, such as hair thinning,
acne, wrinkles, scars, vascular markings, paleness or redness
of the complexion or excessive hair. Sufferers may be concerned
about a lack of symmetry, or feel that something is too big or
swollen or too small, or that it is out of proportion to the rest
of the body. Any part of the body may however be involved in BDD
including the breasts, genitals, buttocks, tummy, hands, feet,
legs, hips, overall body size, body build or muscle bulk. Although
the complaint is sometimes specific 'My nose is too red and crooked',
it may also be very vague or just refer to ugliness.


Q:
When does a concern with one's appearance become BDD?
A: Many people are concerned to a greater or
lesser degree with some aspect of their appearance but to obtain
a diagnosis of BDD, the preoccupation must cause significant distress
or handicap in social, school or occupational life. Most sufferers
are extremely distressed by their condition. The preoccupation
is difficult to control and they spend several hours a day thinking
about it. They often avoid a range of social and public situations
in order to prevent themselves feeling uncomfortable. Alternatively,
they may enter such situations but remain very anxious and self-conscious.
They may monitor and camouflage themselves excessively to hide
their perceived defect by using heavy make-up, brushing their
hair in a particular way, growing a beard, changing their posture,
or wearing particular clothes or for example a hat. Sufferers
feel compelled to repeat certain time consuming rituals such as:
| • |
Checking their
appearance either directly or in a reflective surface (For
example mirrors, CDs, shop windows). |
| • |
Excessive grooming, by removing
or cutting hair or combing. |
| • |
Picking their skin to make
it smooth. |
| • |
Comparing themselves against
models in magazines or television. |
| • |
Dieting and excessive exercise
or weight lifting. |
Such behaviours usually
make the preoccupation worse and exacerbate depression and self-disgust.
This can often lead to periods of avoidance such as covering mirrors
or removing them altogether.
Q:
How common is BDD ?
A: BDD is a hidden
disorder and its incidence is unknown. The studies that have been
done have been either too small or unreliable. The best estimate
might be 1% of the population. It may be more common in women
than in men in the community although clinic samples tend to have
an equal proportion of men and women.
Q:
When does BDD begin ?
A: BDD usually
begins in adolescence - a time when people are generally most
sensitive about their appearance. However many sufferers leave
it for years before seeking help. When they do seek help through
mental health professionals, they often present with other symptoms
such as depression or social phobia and do not reveal their real
concerns.


Q:
How disabling is BDD ?
A: It varies from
a bit to a lot. Many sufferers are single or divorced, which suggests
that they find it difficult to form relationships. Some are housebound
or unable to go to school. It can make regular employment or family
life impossible. Those who are in regular employment or who have
family responsibilities would almost certainly find life more
productive and satisfying if they did not have the symptoms. The
partners or families of sufferers of BDD may also become involved
and suffer.


Q:
What causes BDD ?
A: There has been
very little research into BDD. In general terms, there are two
different levels of explanation - one biological and the other
psychological, both of which may be correct. A biological explanation
would emphasise that an individual has a genetic predisposition
to a mental disorder, which may make him or her more likely to
develop BDD. Certain stresses or life events such as teasing or
bullying during adolescence may precipitate the onset. Sometimes
use of drugs such as ecstasy may be associated with the onset.
Once the disorder has developed, there may be an imbalance of
serotonin or other chemicals in the brain.
A psychological explanation would
emphasise a person's low self-esteem and the way they judge themselves
almost exclusively by their appearance. Alternatively some sufferers
have high aesthetic standards and an impossible ideal. By paying
excessive attention to their appearance, they develop a heightened
perception of how they feel about their body. They become increasingly
accurate about every imperfection or slight abnormality. The way
they feel about their body depends upon a number of factors such
as mood and their expectations. In the end there is a big disparity
between how they see themselves and what they believe they should
look like. The way a sufferer avoids certain situations or uses
certain safety behaviours perpetuates the fear of others rating
them and maintains their excessive attention on themselves.


Q:
What are the other symptoms of BDD ?
A: Sufferers are
usually demoralised and many are clinically depressed. There are
many similarities and overlaps between BDD and Obsessive Compulsive
Disorder (OCD) such as intrusive thoughts, frequent checking and
reassurance seeking. The main difference is that BDD patients
have less insight into the senselessness of their thoughts than
OCD sufferers do. Many BDD patients have also suffered from OCD
at some time in their life. Sometimes the diagnosis of BDD is
confused with anorexia nervosa. In anorexia, individuals are more
preoccupied by self-control of weight and shape.
Other conditions that frequently
exist in combination with BDD or are confused with BDD include:
Apotemnophilia:
This is desire to have a disabled identity in which sufferers
with healthy limbs request one or two limb amputations. Some individuals
are driven to their own amputation such as putting their limb
on a railway line. Very little is known about this rare condition.
However there are significant differences between apotemnophilia
and BDD as cosmetic surgery is rarely successful in BDD, while
the removal of a limb may be successful in apotemnophilia.
Social phobia:
This is a fear of being rated negatively by others leading to
avoidance of social situations or marked anxiety. This usually
stems from the sufferer’s belief that he or she is revealing
himself or herself to be inadequate or inept. If the concern is
only about appearance then the BDD is the main diagnosis and the
social phobia is secondary.
Skin picking and trichotillomania:
This consists of an urge to pluck one’s hair or eyebrows
repeatedly. If the skin picking or hair-plucking is out of concern
with one’s appearance then BDD is the main diagnosis.
Obsessive Compulsive Disorder
(OCD): A separate diagnosis of OCD should only be made
if the obsessions and compulsions are not restricted to concerns
about appearance.
Hypochondriasis:This
is a doubt or conviction of suffering from a serious illness which
leads a person to avoid certain situations and to check their
body repeatedly.


Q:
Are people with BDD vain or narcissistic ?
A: No. BDD sufferers
may be spending hours in front of a mirror but believe themselves
to be hideous or ugly. They are often aware of the senselessness
of their behaviour, but none the less have difficulty controlling
it. They tend to be very secretive and reluctant to seek help
because they are afraid that others will think them vain.

Q:
How is the illness likely to progress ?
A: Many sufferers
have repeatedly sought treatment with dermatologists or cosmetic
surgeons with little satisfaction before finally accepting psychiatric
or psychological help. Treatment can improve the outcome of the
illness for most sufferers. Others may function reasonably well
for a time and then relapse. Others may remain chronically ill.
BDD is dangerous and there is a high rate of suicide.


Q:
What treatments are available ?
A: As yet, there
have been no controlled trials to compare different types of treatment
to determine which is the best. There are studies that have shown
benefit with two types of treatment, namely cognitive behaviour
therapy and anti-depressant medication used to treat OCD.
The principles of Cognitive Behaviour
Therapy (CBT) are described in the section Treatments
for OCD. It is based on a structured programme of self-help
so that a person learns to change the way he thinks and acts.
A person’s attitude to his appearance is crucial as we can
all think of people who have a disfigurement such as a port wine
stain on their face and yet are well adjusted because they believe
that their appearance is just one aspect of themselves. It is
therefore crucial to learn during therapy alternative ways of
thinking about one’s appearance.
BDD sufferers have to confront
their fears without camouflage and to stop all 'safety behaviours'
such as excessive camouflage or avoiding showing one’s profile.
This means repeatedly learning to tolerate the resulting discomfort
and to test out one’s beliefs. Facing up to the fear becomes
easier and easier and the anxiety gradually subsides. Sufferers
begin by confronting simple situations and then gradually work
up to more difficult ones.
Cognitive Behaviour Therapy has
not yet been compared to other forms of psychotherapy or medication
so we don't yet know which is the most effective treatment. However
there is no harm combining CBT with medication and this may be
the best option. Unfortunately many therapists and psychiatrists
have not had a lot of experience in treating BDD. OCD Action may
be able to give recommendations.
Source: OCD Action
2002